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Median Arcuate Ligament Syndrome (MALS)
Digestive Health | Last Active: 9 hours ago | Replies (1229)Comment receiving replies
@astaingegerdm thank for the information. I talked to her doctor last night and she had not heard of MALS but she did research on it and is going to try and get orders for my daughter to get these tests. Unfortunately we have already been denied 3 times at UNC which is one of the top research university hospitals in the country. We are also going to try to get into Duke University hospital. Hopefully we will have better luck getting in there. Your reply was not boring at all. I have read so many stories in the last few days and I feel so bad for everyone especially since for most people suffered for many years before figuring out what was wrong. I'm hoping this is the answer so my daughter doesn't have to go through more years of suffering like so many others have.
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I'm so sorry you're having to experience this. MALS is an awful condition. Facebook has several pages that are excellent resources pages. MALS is one of them, and Median Arcuate Ligament Foundation is another. They have list of doctors and people sharing they're experiences
I was diagnosed 4 hours ago after having 40 tests ruling out every imaginable GI issue. 2 years ago I had a robotic lap to cut back the Median Arcuate Ligament and nerves. Unfortunately it still wasn't enough
I researched Dr Woosup Park for University Hospital in Ohio. He did Open surgery in Nov 2023. I had surgery scare tissue compressing one my Ligament and other organs. This is a very tough recovery but finally successful. Please research your doctors before doing surgery. I didn't want to travel but eventually I finally did from Florida to find the one person who was excellent
Good Luck? Stay positive and keep advocating.