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Has anyone had OHCM symptoms return only 9 months post septal myectomy
Hypertrophic Cardiomyopathy (HCM) | Last Active: Apr 20 3:57pm | Replies (8)Comment receiving replies
Thanks. Although rare, it seems I always fall in that percent. My bnp has gone up- it has doubled since the day after surgery- nine months later and so I am doing an echo and tests next week to see what’s going on. I have that same hcm feeling. I was on camzyos for a year and it didn’t work. My gradient before surgery was 100. I am waiting to see from next week’s echo what the gradient is and next steps.
Replies to "Thanks. Although rare, it seems I always fall in that percent. My bnp has gone up-..."
Yes I always have the bad luck too… everyone doing great on Camyzos and I wasn’t even a bad case in the beginning: It really upset my heart and just coming out if A Fibrillation which I have read it can cause. Good luck and keep strong and keep us posted. I am seeing a surgeon in several weeks re my myectomy. I want to get on with my life as I know you do too.
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It is good that you are getting an echo next week. You have been through a living nightmare! But you are here, you survived open heart surgery, covid, Camzyos, HOCM...now you have this. You will get through this too because you are stronger than you know and you are here for a reason. I will be thinking of you next week, what day is your echo?