Sorry for your condition and suffering. I too have some of the same symptoms, I of course want to have hope of recovering but have also accepted what is. Not even sure at this point if it’s the virus still lingering in my body (as some medical professionals are theorizing) or just permanent damage after the infection.
It’s very frustrating and sad that you think once you get pass the initial infection you’ll be ok…nope! To know we would be sick and suffering years later.
Stay positive, enjoy lulls in the condition, pray and keep going forward in any capacity you can!
I wish you better health and recovery.