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Anyone had to go off mavacamten ? Any side affects after stopping

Hypertrophic Cardiomyopathy (HCM) | Last Active: Apr 17 10:40am | Replies (10)
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@dbrima

That happened to me too. I was on for a year and had no benefits. Had a septal myectomy and not sure why 9 months later I have started to feel like there is no room to breathe. I had no side effects getting off. I felt worse on camzyos. This is such a journey!

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Replies to "That happened to me too. I was on for a year and had no benefits. Had..."
katiekins | @katiekins | Apr 17 9:34am

Yes indeed it is. Do you feel better after the septal myectomy? I do hope so. How long was the recovery and was it minimally invasive? Keep well.

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dbrima | @dbrima | Apr 17 10:40am

I did feel better but just learned late yesterday that my bnp is up. I am doing an echo in 2 weeks because I am in heart failure again. I hope there is something that can be done. I did camzyos for a year and then the septal myectomy. Only 34 with a young son.

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