Yes, by all means don’t give up searching for answers for your daughter. But please don’t be too hasty to dismiss Mayo Clinic as it is internationally recognized as the #1 clinic in the world. I realize I sound like an advertisement. But I know first hand how outstanding this clinic is when it comes to finding answers to complex health issues. You won’t know until you try.

Sometimes diseases can be so rare that there may not be answers or there may be no cure. But perhaps there are some options for helping your daughter with her clotting disorder to find some normalcy in her life. At least if you try Mayo and then there are no answers, you’ll know you’ve done your best to help your daughter.

Not sure if this is an option but have her doctors discussed the possibility of a bone marrow transplant?