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DiscussionStarted Hydroxyurea: How long to see decrease in counts?
Blood Cancers & Disorders | Last Active: Apr 16 1:30pm | Replies (29)Comment receiving replies
Replies to "Hi @katelyn56. We chatted the other day and you’re quite concerned about your daughter who has..."
Hi. No I do not have it. My other children don’t have it. It’s in the genetic makeup from both parents. It’s extremely rare. 1 in a million. It is called Hereditary Factor VIII blood clotting disorder. It is NOT hemophilia, it is at the other end of the spectrum. The liver makes too many platelets. Hyper coaguability Cleveland clinic is supposed to be the best-very disappointing. No help at all. If I contact mayo and they will say ooo yeahhh we have had that!!! It’s not true. I thank you for your thoughts. I’m not giving up 🩷🩷