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@loribmt

Hi @katelyn56. We chatted the other day and you’re quite concerned about your daughter who has Factor 8 clotting condition. Since this is hereditary, it appears this came from your side of the family. Are you also experiencing the same debilitating symptoms as your daughter?
Because this isn’t a common blood disorder there’s not a great deal of data and studies available. I’d still recommend requesting an appointment for both you and your daughter from Mayo. Here’s that link again to get the ball rolling.
http://mayocl.in/1mtmR63
Mayo offers hope to so many people who have not gotten answers from anywhere else. I personally know their hematology teams are relentless in trying to find answers and solutions. They have a very deep bench of medical professionals with an incredible array of knowledge and experiences. It may be worth your time and effort to been seen by the doctors at Mayo Clinic. At least you’ll know you’ve done all you can…
Would this be something you’d consider?

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Replies to "Hi @katelyn56. We chatted the other day and you’re quite concerned about your daughter who has..."

Hi. No I do not have it. My other children don’t have it. It’s in the genetic makeup from both parents. It’s extremely rare. 1 in a million. It is called Hereditary Factor VIII blood clotting disorder. It is NOT hemophilia, it is at the other end of the spectrum. The liver makes too many platelets. Hyper coaguability Cleveland clinic is supposed to be the best-very disappointing. No help at all. If I contact mayo and they will say ooo yeahhh we have had that!!! It’s not true. I thank you for your thoughts. I’m not giving up 🩷🩷