← Return to Anyone take new drug Camzyos (mavacamten) for HCM?

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@nanakpm

Hi. I’ve been on Camzyos for almost a year. So glad to hear from Karen317. I felt better soon after starting Camzyos - more energy, less angina, fewer naps. But the LVOT gradient didn’t come down. My dr wanted me to stop Camzyos and have surgery. I persisted and asked to try higher dose instead. After 6 months the LVOT started to come down. I started on highest dose in November and by January the LVOT dropped from 119 to 58. By April this year it’s down to 7. I think some of us take longer to respond. If you’re feeling ok, stay with it! Great to hear about other people’s response. Thanks to all of you.

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Replies to "Hi. I’ve been on Camzyos for almost a year. So glad to hear from Karen317. I..."

@nanakpm thank you for your advice for I was planning to do the same thing if I reach the same situation you have just increase the dosage and NO open heart surgery. My symptoms improved a lot but I do not know about my gradient till my first echo is done this coming 20th of April.
I do not mind even for maintenance be on camzyos for the rest of my life for it is worth it. My insurance covers that medicine even though that is an insurance I bought by myself and I do not work anymore for I took early retirement.

great to hear.
what is your current dose?