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Does anyone have neuropathy related to MGUS?

Blood Cancers & Disorders | Last Active: May 14 11:39am | Replies (102)

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@kayabbott

I am 69 and have mild polyneuropathy (mainly loss of feeling in arms and legs) from IgA kappa light chain MGUS (8 years) and/or celiac disease. My MGUS is asymptomatic so I just use my hands and feet to keep the nerves engaged (woodturning and other hobbies). I use bioavailable curcumin (otherwise curcumin in turmeric is poorly absorbed); I don't know yet if that will impact my kappa numbers. Here is one link for foot bathing/massage and neuropathy; because it relates to chemo damage it may not apply to us as much: https://pubmed.ncbi.nlm.nih.gov/25275582/ . There are a lot of ads for TENS ems stimulation of nerves, but good to check with doctor or PT on that. ResearchGate has some pubs on massagers being good for peripheral neuropathy: https://www.researchgate.net/publication/339846541_The_Effect_of_Foot_Massage_on_Decreasing_Peripheral_Neuropathy_Diabetic_Complaints_in_the_Patients_with_Type_2_Diabetes_Mellitus . A lot of the research is tied to diabetic neuropathy. I generally recommend a food log and elimination or FODMAP diet, in case any foods result in GI or other inflammation.

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Replies to "I am 69 and have mild polyneuropathy (mainly loss of feeling in arms and legs) from..."

I have neuropathy in both feet now after 19 years of very slowly progressing (grateful) IgGkappa light chain MGUS and take 2-3 Gabapentin capsules which relieve symptoms. In recent years my feet have “gone to sleep” after sitting awhile causing me to stumble and fall when subsequently getting up. MGUS is not a minor condition.

Yes I have neuropathy in limbs causes me to fall often