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DiscussionAnyone taking 5 mg Tamoxifen: Do you have side effects with 5 mg?
Breast Cancer | Last Active: May 11 11:53am | Replies (88)Comment receiving replies
Replies to "OMG that's horrid do sorry you won't thru all that"
Well, I was so grateful to my Texas oncologist for going to bat for me and getting me an oncotype score almost 2 years after I started asking for one (diagnosed Dec. 7, 2021, in Illinois and did not get it until 2023 in Texas). He asked me to try the Tamoxifen and I felt I should. I only got him as my oncologist when I went in for an ultrasound (HerScan) on the one year anniversary of my lumpectomy (1/27/2022 to 1/27/2023). I flunked that test (which I paid for out-of-pocket) rather badly and it led to my current doctor and my 3rd diagnostic mammogram and their desire to do a stereotactic biopsy. I asked that they gather all of my previous mammograms to monitor for change, instead. As for the UTI experience, seldom (if ever) have I been reduced to tears while driving to a Convenient Care, but that is what happened with the OB/GYN lady's receptionist person. Absolutely not a chance that they would see me, despite being on their docket for a full 9 months. I pulled into the parking lot of the Convenient Care in Buda, Tx,, dried my eyes, pulled myself together, and my cell rang again. It was a nurse from that woman's office calling me to tell me to call my oncologist (really about the only avenue left me, short of the Convenient Care). I did so, since I was desperate. The receptionist at the Texas Oncology Hospital said, "Do NOT go into the Convenient Care. I will tell the nurse here. They will call you back ." She reassured me that they generally called back rather quickly and repeated, again, that I should not enter the Convenient Care (which, at the time, was packed with people who were apparently suffering from an upsurge in Covid.) I wiped my tears and sat in my car for 45 minutes waiting for the call back from my oncologist's office. (Luckily, I had my Ipad with me and played euchre to pass the time). That receptionist asked if I could get to the hospital in a nearby town within the next 40 minutes (I was rather far away in a different Austin suburb). I said I thought I could. She told me to immediately come into the lab there and leave a urine specimen, which I did. I was given a second strong antibiotic that actually worked (although, after the UTI feeling passed, everything just felt itchy and I ended up having to go in in person again. A P.A. diagnosed a fungal infection and that required one (or two) pills that did stop the horrible itchiness. I have a healthy and well-deserved fear of UTIs becoming really serious, as one of them killed one of my best friends, Nelson, who had had colon cancer (and a colostomy bag) and battled UTIs constantly. I was also aware that Tonya Roberts (one of "Charlie's Angels") died from one at the age of 65. (Look it up). And I'd been suffering for nearly 2 weeks when all this occurred. This experience did not make me want to continue taking Tamoxifen, although I will say that it was potentially something that, at a low dosage of 5 or 10 mg. daily, I could have toughed it out. My experiences on Anastrozole were so bad that it required a lot of fortitude to even try yet another adjuvant therapy drug. I've not taken any of them since Aug. 30, 2023. Naturally, it concerns me, but so do the experiences I've had in trying to tolerate adjuvant therapy drugs for a full year. I really tried and it does concern me that I've now stopped taking the drug(s) they say will "protect" me, but, as I've said elsewhere, I began to feel that I needed protection from the protection.