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Replies to "Mbryany Thanks for sharing. My dysautonomia is the most difficult symptom of my LC. This sounds..."
Post-COVID Recovery & COVID-19 | Last Active: Apr 21 1:34pm | Replies (12)
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Mbryany
Thanks for sharing. My dysautonomia is the most difficult symptom of my LC. This sounds like a great opportunity. Can you tell us the full name of the study and where is the doctor investigator from or what medical center or location? Is enrollment going to be throughout various states?
I am anxiously awaiting the Yale study however a very similar study with same med out of California closed enrollment and although I haven’t seen results many of us think they may not have found a statistically significant difference and this is why they stopped enrolling. However I had a LC buddy who did do the Yale study and after 4 yrs feels better. We are not sure if she got the active comparator
Replies to "Mbryany Thanks for sharing. My dysautonomia is the most difficult symptom of my LC. This sounds..."
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I’m sorry you too are going through this condition.
So the study I’m participating in is through NYU Langone here in NYC. He only said this particular study is for Dysautonomia suffers and being done though I believe he said three other medical institutions here in NY. And he did not give me the name of the study.
That’s great your buddy is feeling better after so long. I hope things keep going in an improving direction.
And yes unfortunately some of this studies or clinical trials are going to be trial and error, just hope they just keep going forward until treatment and/or recovery is established.