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@steelvengeancekarnan

I just had this issue a few minutes ago, and this has been going on for the past few years. I thought this was because I play the Trombone, but I guess it is not because people have it randomly.

I have been to an Emergency Room and went to different 2 ENT doctors but they said everything was normal. I even took scans, wore neck braces, and did some massages, but did not work whatsoever.

I'm currently very stressed as I am about to go to college soon. farther away from my family, so if this happens, it would be hard for me to get help either from roommates or other people around me.

This has been making me cry myself to sleep constantly to the depressed thought that this would go on for the rest of my life as I have many many more years to live.

I speak on behalf of everybody on this thread that we beg any specialists to look through this in-depth, as I am sure there are even hundreds, thousands, and millions of people who are also in the same depressive state as us but have not come up to voice their concerns.

We want to be heard. I don't want to feel scared to yawn or move my neck anymore.

Edit: I looked at other posts here, and the most common overlying symptom I saw was chronic fatigue/exhaustion. Not surprisingly, I have that too. Any quality and amount of sleep never seem to make me feel awake.

Maybe it's a thyroid issue?

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Replies to "I just had this issue a few minutes ago, and this has been going on for..."

Yes! I don’t understand why this is not more widely known! Doctors seem to have no idea what we are talking about! It is so frustrating!

Didnt realize til after i posted, that this reply shows up at the end of the whole thread instead of the specific poster that I thought i was "replying" to @steelvengeancekarnan. So hopefully @steelvengeancekarnan will see this buried amongst the replies.....

Don't know if you'll see this since you posted this a year ago, but figured I'd send a note just in case. I actually have this same throat issue too, but the reason I'm reaching out to you is because of your last statement: "any quality and amount of sleep never seem to make me feel awake"... Look up Idiopathic Hypersomnia and see if you feel like it fits what you experience. I went through 2 years of testing in my mid-20's for all sorts of various possibilities to explain what was happening to me, before they finally figured it out. Not all doctors even know about it or think to test for it. Most will default to "it's probably depression, here take these anti-depressants". It always annoyed me that they assumed I must have depression, despite having nothing to be depressed about (or at least I didn't in my mid-20's anyway). I always refused to take anti-depressants and demanded they actually do real tests to actually figure out what was the cause. The final test that finally figured it out was I had to go through a sleep study in a facility where they hooked me up with EKG's all over my body and watched me sleep overnight in their facility. Afterwards, they finally diagnosed me with Idiopathic Hypersomnia. I now take medication every morning to keep me functional like a normal person. Without it, I turn into a "drunk zombie" within 2 hours or less of waking up. It's still not a perfect system, there are still days on occasion where i'll still get uber-tired even with the meds. But they are few and far between by comparison. For sure, i wouldnt be able to carry a job or function in normal life without those meds. Anyway, figured i'd share since one of the main symptoms of Idiopathic Hypersomnia is "no amount of sleep is ever enough to feel awake".