← Return to High Factor VIII (8) Blood Clotting Disorder and its Impacts on life

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@loribmt

Katelyn, There are numerous research articles regarding Factor V and Factor Vlll blood clotting disorders. I was going to pull a couple for you but instead I’m going to give you the link so that you can look through these in hopes of finding some answers. It might point you in the right direction for guidance. Treatment can depend on different types and subtypes of this clotting disorder so it’s important that doctors are sure of the correct diagnosis.

Click on the blue link and it will take you to Scholar.google where this page opened up when I typed in the search:
https://scholar.google.com/scholar?hl=en&as_sdt=0%2C14&q=treatment+of+factor+Vlll+blood+clotting+disorder+&btnG=
I can feel your emotions bubbling to the surface. If this were my daughter I’d be going all momma bear too! You want to save your daughter and you want answers now! I owe my life to the hematology department at Mayo-Rochester. From my personal experience I know they’re relentless in trying to find answers to complex issues.

As I suggested earlier, please try requesting an appointment at Mayo. Here’s that link again. http://mayocl.in/1mtmR63

You don’t need a doctor’s referral but I’ve heard it can make a difference. But you can get the ball rolling by checking the link I posted and follow the prompts for new patient and preferred location.

I hope this is helpful for you. Will you please let me know if you find out any thing more from the research?

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Replies to "Katelyn, There are numerous research articles regarding Factor V and Factor Vlll blood clotting disorders. I..."

Hello Lori. I appreciate the information but there are tons of articles on factor VIII for hemophiliacs but none for hereditary ELEVATED Factor VIII blood CLOTTING disorder. It’s extremely rare. When you contact them they all say ohhhh yes we have patients like you but in fact they do not. She has been twice and yes she has the hereditary type. Her numbers are in the severe range at this moment. She lives in pain. No pain meds are given. She probably has 60 blood clots in her body right now They do not care!!! Period. Very very disgusted with CC too. 👎👎👎👎👎