← Return to High Factor VIII (8) Blood Clotting Disorder and its Impacts on life

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@katelyn56

We are 50 miles from Cleveland. Wd did go there already. Some old Dr and he did absolutely nothing for her. They said the had patients like her, they lied. The hematologists, vascular drs are all just willing to let her die. She is suffering and I’m getting angry. I can find NO research, literature on this. I’ve lost faith in the health system. I will not quit however. Thank you

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Replies to "We are 50 miles from Cleveland. Wd did go there already. Some old Dr and he..."

Katelyn, There are numerous research articles regarding Factor V and Factor Vlll blood clotting disorders. I was going to pull a couple for you but instead I’m going to give you the link so that you can look through these in hopes of finding some answers. It might point you in the right direction for guidance. Treatment can depend on different types and subtypes of this clotting disorder so it’s important that doctors are sure of the correct diagnosis.

Click on the blue link and it will take you to Scholar.google where this page opened up when I typed in the search:

https://scholar.google.com/scholar?hl=en&as_sdt=0%2C14&q=treatment+of+factor+Vlll+blood+clotting+disorder+&btnG=

I can feel your emotions bubbling to the surface. If this were my daughter I’d be going all momma bear too! You want to save your daughter and you want answers now! I owe my life to the hematology department at Mayo-Rochester. From my personal experience I know they’re relentless in trying to find answers to complex issues.

As I suggested earlier, please try requesting an appointment at Mayo. Here’s that link again. http://mayocl.in/1mtmR63

You don’t need a doctor’s referral but I’ve heard it can make a difference. But you can get the ball rolling by checking the link I posted and follow the prompts for new patient and preferred location.

I hope this is helpful for you. Will you please let me know if you find out any thing more from the research?