1. < Neuropathy

Giving Nooro a try

Posted by madmouse43 @madmouse43, Apr 9 7:59pm

From my time here on the Mayo Clinic Connect and my own experience I realize that there is no magic bullet for painful feet from PN Wether it be drugs, machines, home remedies or anything else. All of our attempts for relief have received personal unique results.
What helps one does not necessarily help all others or even any others. It is with that in mind that I am going to give the Nooro Foot Massager which I got on a 90 day no questions asked return policy.
I will be using setting 1 at a strength of 13 to see what happens (it seemed like the most appropriate setting) for 15 minutes 1x per day.
If anyone had any hints, suggestions or comments I would live to hear from you.

Interested in more discussions like this? Go to the Neuropathy Support Group.

mikeythecat | @mikeythecat | Apr 11 10:56am
In reply to @skipneuroathy "Please let me know if this works. Are there any reasons why a person should not..." + (show)
@skipneuroathy

Please let me know if this works. Are there any reasons why a person should not use his device, for example , I have a pace maker and some devices do not want you to use it for that reason.

Jump to this post

Do not use electro stim if you have a pacemaker. I tried the ES before I had my pacemaker. I thought it was doing some good but afterward it was back to the same pain. I use these leg "squeezers" you put them around your legs, hook the hoses up to a small air compressor and they intermittently squeeze massage you legs and feet. Feet feel.pretty good afterward. I use them before bed.

REPLY
1 reply
nathandavid | @nathandavid | Apr 11 6:58pm

Thanks. I’m sorry it wasn’t helpful at all.

REPLY
solobeee1 | @solobeee1 | Apr 12 8:23am

I’m always surprised when talking about relief options that LDN- Low dose naltrexone isn’t mentioned.
It’s works for pain!
Not numbness!

REPLY
daj3333 | @daj3333 | Apr 12 8:52am

Apparently there is a company now making LDN pills in 1.5mg and 4.5mg doses so you may not have to have them compounded in the future. My pharmacist is checking on this for me.

REPLY
1 reply
brennankb55 | @brennankb55 | Apr 12 3:36pm
In reply to @jimhd "Someone suggested ice water foot soak, but I didn't enjoy that at all. I have found..." + (show)
@jimhd

Someone suggested ice water foot soak, but I didn't enjoy that at all. I have found that soaking my feet in tap water gave me temporary relief, similar to using lidocaine cream. The cream numbs my feet long enough to get to sleep. As you said, we can't necessarily respond to treatments exactly like the next person.

I'm doing several things to bring my pain down. In 2017, I had a spinal cord stimulator implant that was really great as long as it lasted. Not sure how much it helps anymore, but I keep it turned on. I've been having IVig infusions for two years, until I had to stop in February because I couldn't drive to the infusion center, but I plan to get it started again. I take Prednisone to slow down the progression of CIDP, and take Duloxetine. I took morphine sulfate Contin for several years, but I stopped taking it to try a few other medications. After 2 years of trying, without success, I quit taking Clonazepam so I could go back to opioids without a huge hassle, and a month ago I started taking Dilaudid. It's the only thing that has ever helped me. I spent more than 5 years trying a really long list of medications to no avail. Well, a couple seemed to help, but they caused unacceptable side effects. Lyrica put me in the hospital. So, the search goes on. Some day a magic cure will be discovered. The only one I anticipate is getting to heaven. The cure won't be found in my lifetime, I suspect.

Let us know what you think of the Nooro. I hope it works for you.

Jim

Jump to this post

I tried Nooro and sent it back, which they refunded without any problem. I had to pay return shipping/postage, which was minimal through UPS.

REPLY
1 reply
gmaj85 | @gmaj85 | Apr 13 9:26am

Just be careful with Nooro’s 90 day money back guarantee. I tried their knee massager and when it didn’t do anything for me, I called to get my money back. They have a sweet talking representative who sympathized with me and said she would send me calf massagers for free and to keep trying the massager for 2 more weeks. Nothing worked and when I called back, she offered me a 25% refund and I could give the products away.
When I complained and read the no questions asked guarantee to her, she offered 50%
and 2 free roll on pain relievers. The knee massager would’ve had to be returned to China. I was so tired of talking to her I just took that offer. My pain is more in my knee although I do have numb toes. And I have spent lots of money on attempts to get relief.
Good luck to you and I will keep this group posted on any further attempts at relief.

REPLY
madmouse43 | @madmouse43 | Apr 13 7:06pm

Thanks for the information. So far as for the Nooro pad at least, others have had no problem. If it doesn't work for me I hope I have as easy a time of it as they did.

REPLY
joeys62 | @joeys62 | Apr 15 5:03am

One of the first things I tried. Did nothing for me. I wasted 100+ dollars and found it on Temu for a fraction of the cost. I guess it does help some so I hope it helps you.

REPLY
1 reply
mikeythecat | @mikeythecat | Apr 22 9:54pm
In reply to @brennankb55 "I tried Nooro and sent it back, which they refunded without any problem. I had to..." + (show)
@brennankb55

I tried Nooro and sent it back, which they refunded without any problem. I had to pay return shipping/postage, which was minimal through UPS.

Jump to this post

I sometimes rest my feet on an icepack. It relieves the "burn" for enough time to get to sleep.

REPLY
aaron_az | @aaroncush | Apr 22 10:53pm
In reply to @daj3333 "Apparently there is a company now making LDN pills in 1.5mg and 4.5mg doses so you..." + (show)
@daj3333

Apparently there is a company now making LDN pills in 1.5mg and 4.5mg doses so you may not have to have them compounded in the future. My pharmacist is checking on this for me.

Jump to this post

It was really expensive through my insurance - something like $300 for a month vs. $57 compounded. Always trust the pharmaceutical companies to gouge patients.

REPLY
1 reply
View MoreView Less
Please sign in or register to post a reply.