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High Factor VIII (8) Blood Clotting Disorder and its Impacts on life
Blood Cancers & Disorders | Last Active: Apr 27 9:27am | Replies (125)Comment receiving replies
Welcome, @katelyn56. Oh my gosh, you must be at your wits end with worry for your daughter! Since High Factor VIII (8) Blood Clotting Disorder is more rare this may be out of the experience of her local doctors.
I’d like to suggest requesting an appointment from a Mayo Clinic location…either Rochester, Phoenix or Jacksonville. http://mayocl.in/1mtmR63
I’m not sure where your daughter lives, but it would be worth the effort to get second opinion.
There are also Mayo Network Health systems across the country who meet Mayo’s high standards of excellence. Here is the website with a map and location of these affiliated medical providers.
Is your daughter near a larger teaching hospital or clinic such as Mayo, Cleveland Clinic, etc., where their range of experience is deeper?
Replies to "Welcome, @katelyn56. Oh my gosh, you must be at your wits end with worry for your..."
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We are 50 miles from Cleveland. Wd did go there already. Some old Dr and he did absolutely nothing for her. They said the had patients like her, they lied. The hematologists, vascular drs are all just willing to let her die. She is suffering and I’m getting angry. I can find NO research, literature on this. I’ve lost faith in the health system. I will not quit however. Thank you