Welcome, @katelyn56. Oh my gosh, you must be at your wits end with worry for your daughter! Since High Factor VIII (8) Blood Clotting Disorder is more rare this may be out of the experience of her local doctors.
I’d like to suggest requesting an appointment from a Mayo Clinic location…either Rochester, Phoenix or Jacksonville. http://mayocl.in/1mtmR63
I’m not sure where your daughter lives, but it would be worth the effort to get second opinion.

There are also Mayo Network Health systems across the country who meet Mayo’s high standards of excellence. Here is the website with a map and location of these affiliated medical providers.
Is your daughter near a larger teaching hospital or clinic such as Mayo, Cleveland Clinic, etc., where their range of experience is deeper?