Mold in lungs

Posted by skm101 @skm101, Mar 19, 2024

I am in the progress to determine why a nodule and some lymph nodes lit up my PET scan. The Bronchocology said all non-malignant and lung wash showed mold present. My Dr says although inconclusive, something is causing those areas to light up the PET scan and bronchocology is a very small need biopsy and doesn't think the non- malignancy is correct. I'm scheduled to see a surgeon the muddle of April to remove nodule and whatever else he determines. I am concerned about the mold, maybe the lesser of my current worries. They did test for the fungus type(s) that could light up a PET scan but they were negative. My previous home had mold in my workspace where I sanded a lot of furniture but I moved 4 yrs ago. My Dr says doing a larger biopsy of the nodule( bronchology couldn't reach it so it wasn't biopsied) could be inconclusive as well. What makes these biopsies inconclusive. I thought I'd get conclusive answers. Now I'm going to remove a wedge of my lung to get the nodule/mass out and biopsy that then. I am just confused because I thought biopsies were pretty black and white on conclusions. Can I have hope that the mold is causing the PET to light up? Why aren't they even talking about the mold or what to do for it? Is it not important? When I visited with my doctor, I didn't think to ask. Mostly because I thought everything was OK and then when he said all the other, I was so dumbfounded I didn't think to ask about the mold. It's not easy to get answers unless you have an appt and I'm not suppose to meet with him again until after my wedge resection probably not until May.

Any thoughts?

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Thank you to everyone that responded. Comforting to know I'm not alone. I sent and am trying to send my tests to Mayo. My hospital here is slowish and having trouble faxing them but they are nice about it. There's that.

I see a thoracic surgeon today but still haven't gotten my second opinion from Mayo due to the records not there yet as stayed above.

Surgeon will probably just set a surgery date and not give an opinion as to whether it's absolutely needed or not. I wish it were more black and white. I did finally tell my girls what is going on and they are supportive but have busy lives. I sometimes wish my husband of 26+ years didn't decide on a younger model. I could have used his support right about now, which is also why I'm so glad I found this group! Thank you.

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