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High Factor VIII (8) Blood Clotting Disorder and its Impacts on life

Blood Cancers & Disorders | Last Active: Sep 10 9:49am | Replies (133)
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@katelyn56

I happened upon your story seeking information on hereditary elevated factor 8 clotting disorder. My daughter is very ill. She’s 46. Looking for expert guidance in this field. The drs are just willing to sit back and let her die because they say there is no research? HELP. She is Coumadin, eliquis resistant. She just continues to throw blood clots. 3 surgeries for arteries and veins in her left leg.

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Replies to "I happened upon your story seeking information on hereditary elevated factor 8 clotting disorder. My daughter..."
Lori, Volunteer Mentor | @loribmt | Apr 11 10:29am

Welcome, @katelyn56. Oh my gosh, you must be at your wits end with worry for your daughter! Since High Factor VIII (8) Blood Clotting Disorder is more rare this may be out of the experience of her local doctors.
I’d like to suggest requesting an appointment from a Mayo Clinic location…either Rochester, Phoenix or Jacksonville. http://mayocl.in/1mtmR63
I’m not sure where your daughter lives, but it would be worth the effort to get second opinion.

There are also Mayo Network Health systems across the country who meet Mayo’s high standards of excellence. Here is the website with a map and location of these affiliated medical providers.
Is your daughter near a larger teaching hospital or clinic such as Mayo, Cleveland Clinic, etc., where their range of experience is deeper?

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