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Anyone had to go off mavacamten ? Any side affects after stopping
Hypertrophic Cardiomyopathy (HCM) | Last Active: Apr 17 10:40am | Replies (10)Comment receiving replies
Sadly they didn't work for me. Did not improve breathing or tiredness had a full cardio echo no improvment condition still progressing no improvment was shown so my cardiologist took me off them . I also was quite off balance most of the time dizzy
Have to go back 6 months.
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thanks for the info. hope you’re feeling ok.