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Does any one have HOCM & Systemic Amyloidosis?

Hypertrophic Cardiomyopathy (HCM) | Last Active: Apr 12 11:28am | Replies (6)
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@soonerfan

She confirmed the Mayo diagnosis.
I got my port last Friday. I start treatments This Friday. I will have them weekly for 4 months.
I feel that with every day ( and getting that Camzyos out of my body) I am getting stronger, I still have dizzy days but less. My blood pressure improved. I still am using my walker, kinda afraid not to.
I guess I am a special case. Thank you for responding. Hope you have a great rest of your day.

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Replies to "She confirmed the Mayo diagnosis. I got my port last Friday. I start treatments This Friday...."
Debra, Volunteer Mentor | @karukgirl | Apr 11 9:35am

Oh gosh! I hope this helps you get your life back to a place you feel normal, or close to it again. You were dealt a double whammy!
I'll be praying for you on Friday. It must feel surreal being on this journey. One you didn't expect to be on. You sound like a strong person with a great attitude, and that will help you navigate these challenges. Do you have a favorite activity or hobby you can lean on to help you as you go through this?

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