Confused by doctor options to choose, including Keith McCormick

Posted by stacibw @stacibw, Apr 2 11:51am

I’m still learning and navigating my Osteoporosis diagnosis and trying to get my healthcare providers lined up. I’m 51.

I have a PCP who I will only be using as a “sick doctor” going forward. She is aware of my diagnosis and is not up to date on care or treatment.

I have a neuro-kinetic therapist who I work with (recovering from a back injury) who is extremely knowledgeable in osteoporosis exercise. So I will continue to work with her for strength building.

I have a gyn who is not knowledgeable about osteoporosis and referred me to a local endocrinologist.

Those are all of my current health care providers.

Here’s where I’m getting confused….

I really am drawn to Keith McCormick. I prefer functional medicine but like that he also is incredibly knowledgeable about meds and doesn’t hesitate to use them when needed. I have no problems with video appointments.

I have a consultation with the Mayo Clinic in July - the endocrinology team.
They will review my case and decide if they will provide a treatment plan for my local docs or if they will accept me as a patient. So that’s up in the air.

There is a local functional doctor, who specializes in healthy aging and osteoporosis that I am considering.

The endocrinologist that my gyn referred me to doesn’t have an opening until August.

My questions….

Do people use Keith McCormick to completely manage osteo? Or do you also have a local endocrinologist and they work together? Furthermore, when McCormick orders labs, is that done at a local lab or through my regular doc? Thinking costs…..and insurance (I have Cigna - too young for Medicare) for all of those lab tests.

Does anyone have a functional doctor that manages osteoporosis in collaboration with Keith McCormick?

Does anyone see a dietician? I eat a whole foods plant based diet, so am realizing that I am deficient in quite a bit of protein and calcium according to “Strong Bones” teachings. Both of the functional med doctors have nutritionists on board that could help with that.

I’m so overwhelmed just choosing providers! What do you suggest?

Cost does matter - it isn’t the driving factor at this point (understanding and knowledge is the highest priority now).

As of now - I’m flying solo until the end of July, when I meet with Mayo. Wish I had some solid medical guidance before then, but so far have not been able to get earlier new patient appts.

What are most people doing - especially those who have seen or talked to Keith McCormick for a consult or care?

The more I read, the more confused I get. I have time to make decisions, but half a year will have passed before I actually see someone, let alone make any decisions about care. Need to get my ducks in a row.

Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.

@stacibw

I’m driving seven hours.

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Dear Staci: WOW!!! But I can understand. You want answers!

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@stacibw

Thank you. I am hoping to do both, even if I think one or the other bombs or goes beautifully. What I do with that, I have no idea!

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Good luck and please let us know what happens with both. I was thinking of consulting with McCormick but opted for a local functional medicine doctor, which turned out to be an expensive mistake. I then went to see the orthopedist Dr. Bush and get a REMS scan. So far I am satisfied with his guidance but am curious about McCormick.

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@windyshores

Read about the conflicting reports on cardiovascular risk with Evenity. one trial found no difference between Evenity and placebo, and one found a slight difference with alendronate being slightly better. Read the begining but especially the section on clinical trials- scroll down.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9511529/

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Thank you so very much windyshores! I will study this article.

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Some general thoughts:

If your scores are less than, say, -3.3, or even -3.0, the advice by McCormick is not going to be different from a good endocrinologist. With severe scores, this isn't that complicated. There are 5 choices, Forteo and Tymlos as anabolics, Prolia and bisphosphonates as anti-resorptives, and Evenity as both. I think the main choice is between the anabolics Forteo or Tymlos, and Evenity. I chose Tymlos first and am now doing Evenity.

I research and come up with all kinds of complicated questions which noone, including McCormick, can answer. It's good to be informed. But in the end, I think it really is simple. The problem is insurance.

Docs are told by insurance to start with anti-resorptives, which can later affect the effectiveness of anabolics. The docs need a reason to authorize anabolics. If we qualify for free drugs or financial assistance from companies, then insurance does not dictate our treatment, but the overall policy needs to change.

For those with better scores- that is when it gets complicated, I think. Meds or no meds? And then how to approach things "naturally." McCormick, naturopaths, integrative medicine docs, dieticians, exercise experts (Margaret Martin) all are very useful in that situation and I have found endocrinologists know less about this in many cases.

I understand the issue of quality of life but as a person with several fractures, I will take side effects (if tolerable) over more fractures. But that's me. I am almost done with anabolics and hope I have earned some years without fractures! I will prioritize natural methods to keep my gains after a year or two of low dose Reclasts.

.

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@windyshores

McCormick did Forteo himself and has done well. He broke cortical bone. I did Tymlos first and my hip (including cortical) gained quite a bit. I think it is reasonable to do Tymlos first and then Evenity. McCormick is a big fan of Evenity right now, it seems, but the other meds are good too. You can do Tymlos, covered by insurance, and if gains are not enough, iinsurance should then cover Evenity. That is what I am doing. Just my two cents!

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Interesting to hear different doctors' take on which med. The doc I consulted is pretty experienced in treating osteo for years now. The recco for me was to take Tymlos. I asked about Evenity and doc had strong opinions against it - won't prescribe or recommend Evenity to patients right now. Feels it's still too new, without enough real-world results yet and is leery on the elevated heart risks seen in some patient results.

This doc is fairly cautious/conservative though. So take that for what it's worth. As we know, other docs feel differently. Is it any wonder we're confused? lol

For the person asking about a Mayo consult via zoom - they refused when i tried. They said first appt MUST be in person, regardless of where the patient lives. Won't do virtual. 🙁

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@windyshores

Read about the conflicting reports on cardiovascular risk with Evenity. one trial found no difference between Evenity and placebo, and one found a slight difference with alendronate being slightly better. Read the begining but especially the section on clinical trials- scroll down.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9511529/

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Thank you so much Windy! So much information!

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@tsd1366

Hello dna41 and thisoldewe -
How long have you been taking Prolia? And has your doctor been open to help you wean off Prolia? Are you going to take another osteoporosis medication or going to manage it without medications?

I would like to get off Prolia and plan to talk to my endo in June. I've taken Prolia 3 times and would like to not take it come the 4th time. Any suggestions on best way to approach this subject with the endo?

All the best to you both.

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I'm in the same place that you are. 3 infusions but want to stop . Dr will prob disagree

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@hopefullibrarian

After writing my previous comment, I saw one by @bluebonnet242. She's been trying to get an appointment with Dr. McCormick, and he's booked out until June. You can read her comment here: https://connect.mayoclinic.org/comment/1043669/
His opinion is highly sought after, so it may still be worth getting a consult even if it's after your appointment at the Mayo. He can't order tests, or prescribe meds. Instead, he can give you guidance, and if your doctor/s willing, he'll work with them to plan the best treatment for you.

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Dr McCormick may mot be able to order tests for us, but i contacting his office for a consult, I found that he does want to see what has been done. Like 2 years of lab tests & a healthy history.

Hi Annette!

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@stacibw

I googled “how to get an appt with mayo” and completed a screening questionnaire.

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How much detail did you provide in the questionnaire? How soon were you contacted and how quickly did they schedule an appt? Are you getting your osteoporosis treatment through the Mayo, or was your appt only a consult for recommendations on what meds to take, etc? Thanks.

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@ripley

How much detail did you provide in the questionnaire? How soon were you contacted and how quickly did they schedule an appt? Are you getting your osteoporosis treatment through the Mayo, or was your appt only a consult for recommendations on what meds to take, etc? Thanks.

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To all, I’ll say Windy shores has summed up the med options well. I personally saw an endo after a fragility spine fracture and I’ve been an athletic active person my whole life- but realize now my activities weren’t the kind that you need to do to really impact your bones. Anyway, the endo though really discussed all the drug options in detail and based on my preference to not mess with Evenity cause it’s so new recommended Forteo. They knew nothing when I asked about what wt bearing or other exercises I should be doing. Did say to look up Margaret Martin on YouTube. I did that. Then from there really drilled down in my effort to learn as much as I could to make a decision I felt comfortable with. I saw Clint Rubin right out of the gate talk about the Marodyne , and his sister , Janet, I believe, who is an endocrinologist at a well known NC university. Interesting to hear them discuss Op from both their perspectives. Bought McCormicks Great Bones book . He said in there if going to an integrative / functional dr to make sure Osteoporosis was their specialty . He gives a list of questions to actually ask when you call their offices to see if the one you choose is a good choice or not. I did that. Felt none of them really were and very expensive for first visit with long wait time. All of them talked about one follow up visit - which stunned me -the eval of 1 1/2 hr and a follow up. What??? !!!Looked at price between those people and McCormick himself and price was comparable, or less to talk with him, so decided to do that. I mean all that time I was researching and trying to get a TBS along with my DEXA so I’d have that info before seeing him. That was a difficult process , but I accomplished it . Before meeting with McCormick I had my 6 month follow up up with my Endo who now had changed cause the initial one was a Fellow and had since moved on . When I saw the new Endo I had already done a significant amt of research and knew quite a bit. We had a great discussion and I told her that I’d read McCormicks book, of which she’d never heard of , and I also told her I had an upcoming initial consult with him and asked her if she’d work with him and me together. She seemed to go along with it. I told her bluntly that until I felt good enough with my knowledge of the options I wasn’t rushing into any med. I since have met with McCormick another time with just some quick calls to his office for some clarification, Anyway , all along this way I’ve been to Margie Bissinger’s Osteo Symposiums now 2yrs, and joined her Happy Bones Happy Life community where you get a few guest lectures each month , a question and answer session, and a Happiness Training Lesson . McCormick and many higher level people are her guest lecturers. I’ve gone to be evaluated and observed the Onero Program based off of Belinda Becks LIFTMORE research .Though not doing it per say because the closest one is 3 hrs away . And though McCormick and I had decided I’d start Forto just after the 2024 new year - many tests and hurdles jumped and just this past Friday I was trained for the Forteo shot and have done it now 2 days at home on my own . NO PROBLEMS - NO DIFFERENT FEELINGS AT ALL. Hope that continues!!! I am positive and will say I also just finished a very intensive root causes of osteoporosis program with Kim Millman . So with taking the anabolic and with my more full understanding of how to live my life from a metabolic way I feel I should have all things working for me . And just to say this I choose Forteo because I fractured my spine , my hips are pretty good AND I had no interest at this point doing Evenity as it has not been out on the market long with any far reaching history!!
That was quite a rant , but maybe helpful to someone!!!
Good luck to all navigating this issue!!

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