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Anyone had to go off mavacamten ? Any side affects after stopping

Hypertrophic Cardiomyopathy (HCM) | Last Active: Apr 17 10:40am | Replies (10)
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@peggynurse

just curious, what was the reason you were taken off the medication?
how are you feeling? And did you notice any difference when you were on the medication?

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Replies to "just curious, what was the reason you were taken off the medication? how are you feeling?..."
maree56 | @maree56 | Apr 10 8:06pm

Sadly they didn't work for me. Did not improve breathing or tiredness had a full cardio echo no improvment condition still progressing no improvment was shown so my cardiologist took me off them . I also was quite off balance most of the time dizzy
Have to go back 6 months.

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