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Anyone with MGUS, do you have joint pain?

Blood Cancers & Disorders | Last Active: Oct 23 8:21am | Replies (39)
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@dede7

About 20 years ago, I was diagnosed with MGUS. Once A year I traveled to a cancer hospital for blood work. Thank goodness no cancer but I did have some different health issues pop up such as, CIPD, possible Sjogren and Lupus. I also had Lyme Disease. I am now in my 80’s and my M spike is 0.4. Presently I have relocated and closer to larger facilities. I have several Doctors and my latest situation is kidney problems. I am not diabetic but my kidney biopsy said possible MGRS. I take several medications. I guess I am lucky in some ways but I am getting weaker and forgetful and tired.Just wanted to vent I guess.

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Replies to "About 20 years ago, I was diagnosed with MGUS. Once A year I traveled to a..."
Patty, Volunteer Mentor | @pmm | Apr 11 9:09am

@dede7
Vent away! Sometimes we just need to let it all out.
As I age, I am well aware of the ways that my body is betraying my somewhat youthful spirit. I hate it that I can’t seem to hold onto details such as names. I have entire conversations with people, hoping that they will toss me a memory bone and remind me who the heck they are. The cognitive decline is slow but insidious.
For those of us who carry more than one health burden it is hard to know which symptom is attributable to what disease, but unless aging is reversible, venting is a reasonable way to address it…as long as I can remember to whom I am venting.
Hugs.
Do you have a good support system to whom you can vent regularly?

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