CellCept and Promecta for treatment of chronic ITP?

Posted by nanlee @nanlee, Apr 10 7:13am

I am 75 yo female who was diagnosed with chronic ITP in 2020 because of trend of low platelets(in 90K range)evidenced on routine CBC’s. Stable until Nov 2023, when platelets dropped to 50K range following Covid vaccine in Oct 2023 and shingles vaccine in April 2023. Now, followed by hematologist at Duke Univ Medical Ctre. Weekly blood tests since Jan 2024 with decline in platelets as low as 25K.Course of prednisone elevated platelets to 250K but dropped as soon as predisone tapered. Recommendation now is for CellCept and Promecta. Has anyone had experience with these drugs?

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chowdhury6 | @chowdhury6 | Apr 10 9:49am

Hi. I was diagnosed with lupus 10 years ago. Last few years my autoimmune condition was attacking my platelets to 4 thousand. Which is dangerous. I had to take Rituximab infusion. 4 treatment in 2021. My platelets was good for one year. Then again it was down to 10k. I had to take Rituximab again for 4 treatments in 2022. My oncologist told me usually it last about one year. Now it is 16 months I did not take any infusion. My platelets is around 150k. Every month I do blood work. This is my story. You can ask your doctor about Rituximab. I hope you get a good answer. Selina from Colorado

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