Connect
Can anyone assist me with any help in regards to my skin condition
I got psoriasis in September last year 2023 after strep throat a couple of weeks prior. It covered my whole body including my hair but not my face. My skin has only just now started to improve a bit after my steroid cream was changed to diprosone. I have many other symptoms including extreme fatigue, joint pain and sometimes swelling, body aches and muscle weakness in my arms mostly, and numbness in my hands that wakes me up every night and I wake up every morning with completely numb hands. About a month ago I developed a butterfly shaped rash on my face that made my skin red roar and extremely dry flakey skin. It felt like it was burning. My gp said that it was a side effect of using Enstillar foam spray for my psoriasis on my body so I was changed to diprosone. I feel I'm not being listened to and the doctors are missing something. I can feel something wrong within me. I also get kidney pain often. Can anyone help me with any possible answers ? Please. I am a 44 year old female. I have had psoriasis and psoriatic arthritis in 2007. I also had the ulcer form of psoriasis in my mouth, and the fungal nail psoriasis in 2007. One skin flare up around 2018 and nothing again until September last year.
Like
Helpful
HugInterested in more discussions like this? Go to the Autoimmune Diseases Support Group.
Connect
Do you have a rheumatologist? I’m surprised your Family Doctor would choose to treat this complicated disease.
What area of the country are you in?
-
Like -
Helpful -
Hug
4 Reactions@michellesorbello13 Welcome to Mayo Clinic Connect! I think you’ve some to the right place to get help. We’re not doctors so we can’t offer medical advice or a diagnosis, but someone with something similar will tell you what they had/have and what they did about it.
If you can, you want to go to a comprehensive medical center or university hospital near you. They would be better able to diagnose and treat whatever you have. Just give them a call.
I don’t know your medical system in Australia, but if you need a referral, go back to your GP and ask/demand one. You can see either a rheumatologist or dermatologist.
What do you think would be the most important aspect of your condition to tell the doctor?
-
Like -
Helpful -
Hug
4 ReactionsOops. I completely missed you were in Australia. Apologies
-
Like -
Helpful -
Hug
2 ReactionsI feel so bad for you. What terrible problems you are having. I don't have any advice other than try to research as much as you can on the computer and maybe give the doctor some direction in solving your problems...wish you all the best.
-
Like -
Helpful -
Hug
4 ReactionsI’m hoping you can have access to a dermatologist at a medical center.
You are at the point of needing more effective intervention.
Internal medication termed disease modifying is needed in your situation.
Topical creams are not totally adequate for your type of psoriasis.
Have you had methotrexate or a trial of an injectable antibody.? Blood
testing for arthritis and inflammatory indexes should be followed as well.
Usually dermatologists and rheumatologists cooperate in managing your
problem. Are referrals available even if travel is necessary?
-
Like -
Helpful -
Hug
5 ReactionsThankyou for your response. I finally just got an appointment with my local hospital and they took a skin biopsy of my leg as my lower legs have been insanely itchy and that came back as atopic dermatitis. But the rash on my legs is different to what it originally was and to the rest of my body. I have an appointment with the hospital rheumatologist in 2 weeks. I also get alot of fluid retention in my body. The dermatologist at the hospital I feel was really dismissive and said just keep using the diprosone and see you in 4 months! I also have depression and anxiety.
-
Like -
Helpful -
Hug
5 ReactionsThankyou so much
-
Like -
Helpful -
Hug
1 ReactionThankyou. That is my plan now to research as much as I can and learn as much as possible so I can take it all to my doctors and see if all the issues are related somehow because the more I read it seems that way. Any and all advice is greatly appreciated.
-
Like -
Helpful -
Hug
4 Reactions@michellesorbello13
You poor thing. I feel for you and your suffering. From what you describe and from my personal experience, it seems you have a combination of something rheumatological and neurological and an autoimmune response. You may also benefit from seeing a neurologist for EMG and nerve conduction testing plus bloodwork tied to central/peripheral nervous system. Something is triggering your numbness, weakness, facial rash (Trigeminal nerves causing burning rash on face…I have had that and extremely painful). What I have learned is that certain viruses acquired in life (mono EBV, herpes HSV, COVID, etc.) lay dormant in nerve ganglia and get reactivated (triggered by stress/illness/autoimmune) and when they do, it can wreak havoc in the body. It may also be good to do a full blood panel for your thyroid (TSH, T3, T4, TPO for autoantibodies) to see if something is off. Sometimes you may fall in the “normal” range but it may not be optimal levels for you. You would want an endocrinologist to help you if your thyroid is not functioning properly. Prayers for you to get the help you need and deserve! Really advocate for yourself to improve the quality of your life and prevent any worsening symptoms.
-
Like -
Helpful -
Hug
4 ReactionsHi, i have almost the same syntoms iam 51 years old, i live in Colombia. first episode in August 2023 i´ve visited 5 dermatologists and 2 rheumatologists 3 hematologists, 1 internist doctor; many blood exams and everything is ok (says Doctors) biopsia says ¨granuloma anular" and the other one "dermatitis" i continue looking for a treatment or an medical answer.
That appear and after dissapear and repeat 2 o 3 months later worst. im very worried
View Translation
-
Like -
Helpful -
Hug
4 Reactions