1. < Neuropathy

Complete left side pain, from top to bottom.

Posted by jaaade @jaaade, Apr 3 9:29pm

hi everyone. looking for insight or someone with similar symptoms and experiences.
here are my symptoms: my whole left side starting from my left eye socket and left jaw, to my left leg pinky toe pain. i'm talking about all of it. left eye socket, left side jaw, left side shoulder including the whole shoulder socket and even towards the back of my shoulder, left bicep, left wrist, left side ribs, left butt lol, left side back of thighs, left calf, left ankle, now my whole heel hurts tho so not just left side, and left side of my edge of my left foot (not my whole left foot just the left edge) and finally my left pinky toe. now the most pain is mostly on my left calf, heel, pinky toe and left shoulder and socket. these symptoms used to be very mild, random and never all at once. since a few days now, I've had these symptoms and they are not going away. i even thought i was having a heart attack and went to the ER when the sharp pain in my chest got added (they've since gone and i normally get those anyway and apparently they're just inflammation related because heart doc didn't find anything in an ultrasound, but it's been 7 years since). they checked me for heart attack and blood clots. lots of exrays and
ultrasound and blood work. there was nothing there.

i'm premenopause, and have hypothyroidism and sjogren's. i'm wondering if it has to do with neuropathy. i do know that consulting a doc is the best thing to do etc etc. the ball is already rolling on that front. i'm just looking for opinions, ideas, personal experiences that are similar etc.. hopefully someone will be able to relate.

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Mentor
Jennifer, Volunteer Mentor | @jenniferhunter | Apr 9 6:01pm
In reply to @jenniferhunter "@snowmass When I sent in imaging and reports because I needed spine surgery, when the nurse..." + (show)
@jenniferhunter

@snowmass When I sent in imaging and reports because I needed spine surgery, when the nurse talked to me, I was told getting into Mayo was about a 3 month wait, and I said OK. That is variable between departments and can change with patient requests and capacity, so you'll need to go with what they say the wait will be. After my request, it was 5 weeks later that I got a call from Mayo offering a consultation appointment because there had been a cancellation. I think the appointment was a week later, so I had to figure out quickly where to stay. We were driving, so I had only a hotel to reserve. You may want to figure out the logistics now so you are prepared if you get a call for an appointment on short notice. I do think that the complexity of having a cervical spine condition and TOS (thoracic outlet syndrome) together would increase the chances of being accepted as a patient because TOS is something that is missed by many doctors and not understood well, and it can have overlapping symptoms with a spine problem that can make getting a correct diagnosis challenging. Mayo does diagnose and treat TOS.

I'll keep my fingers crossed for you.

Jennifer

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@snowmass There are a lot of John Barnes certified therapists doing myofascial release in the LA area. You can search for them at this link. https://mfrtherapists.com/ I didn't remember if I had given you that information before. Yoga stretches are also a form of myofascial stretching. That is often what is recommended for TOS as therapy.

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1 reply
snowmass | @snowmass | Apr 9 6:53pm
In reply to @jenniferhunter "@snowmass There are a lot of John Barnes certified therapists doing myofascial release in the LA..." + (show)
@jenniferhunter

@snowmass There are a lot of John Barnes certified therapists doing myofascial release in the LA area. You can search for them at this link. https://mfrtherapists.com/ I didn't remember if I had given you that information before. Yoga stretches are also a form of myofascial stretching. That is often what is recommended for TOS as therapy.

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Yes you did. 🙂 thank you Jennifer. I found one clinic in Glendale from the website you gave so I am going to check it out tomorrow. Jae

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snowmass | @snowmass | Apr 9 7:10pm

Although I have already mentioned a bit of history of my case, I may add a bit more in case if it’s helpful.
It feels like my menopause came all of sudden or thought was very mild in the beginning. After about 3 month after my last menstruation, I had a whole body bruised joints feel one day which lasted about 2weeks. I could not lift a cup into my microwave nor do any dishes. So this I believe made my already existing issues ( cervical issues and TOS symptoms even worse ) as I was in the process of getting exams and entered into realm of pain management I had a first experience of tension headaches and hyperventilation while I was driving which landed me in going to ER for the first time.
Since then I started HRT at lowest dosage. For the whole body referred pain which seems to be indirect, I am hoping MFR may shed some light on treating it from different angle. Western medicine seems to not know how to deal with these referred pains other than referring to eastern medicine like acupuncture which I am also trying but been told it takes a while. Are you of the sensitive and tight body type?

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dkappel | @dkappel | Apr 10 7:20am
In reply to @jaaade "This is so true! Thank you. Still in pain today. And still resisting medication. I hate..." + (show)
@jaaade

This is so true! Thank you. Still in pain today. And still resisting medication. I hate taking medication. But I know I need to help my body so I'm about to go ahead and take some pain pills now. The anti inflammatory properties should help my poor body that's in havoc I'm sure. I'm crossing my fingers that the flareup goes away soon. It is one of the worst ones I've experienced.

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I understand your hesitation on pain meds, but living a life of pain is not real living. The knock on opioids is undeniable but also flawed. Yes one can be dependent on them if taken as the Dr ordered. But taking it to get high will certainly make you a person that needs those meds for more than just pain. But the risk is better than the pain. That’s just my opinion, everyone is different.

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rmshackelton | @rmshackelton | Apr 11 12:36pm
In reply to @jaaade "dull and constant pain. the sporadic chest pain is sometimes sharp and is sometimes dull as..." + (show)
@jaaade

dull and constant pain. the sporadic chest pain is sometimes sharp and is sometimes dull as well.

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Hopefully it is not a burning pain like I get with CRPS? It burns all the time but when it FLAIRS I have to take my special THC the marijuana store gave me. I tried a few others from another dispensary and did not work at all. Went to a new place and they were correct in the gummies I needed for pain and relaxation. I cannot drive but it does relax the nerves so I feel less pain. I usually have a friend around I can rely on if I HAVE to go somewhere. If not, I don't worry. Always eggs in the home!!!! Gentle hugs

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dlydailyhope | @dlydailyhope | Apr 12 7:49am

@jaaade
I am 54 and have had many of your symptoms. It sounds definitely neurological and it would be good to get a good neurologist to do EMG/nerve conduction studies and MRIs/MRNs of brain/cervical spine/lumbar spine to see if you have a structural issue impacting spinal cord/nerve roots since it seems tied to one side of your body. Once done, if you have a spinal issue, they may be able to help with spinal injections for pain, medications for nerve pain (Cymbalta/gabapentin low dose at night), lidocaine pain patches (I prefer Salonpas brand), capsaicin nerve pain creams, and alpha Lipoic acid and Acetyl L carnitine supplements. Good luck getting answers and pain relief!

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