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Essential Thrombocytosis symptoms

Blood Cancers & Disorders | Last Active: Apr 15 3:10pm | Replies (59)

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@lynnevb

Hello All,

Here is a wonderful booklet for you to read. It may look too complicated at first glance but keep rereading it.
People with will ET are in the Myeloproliferative Disorder group.

I have had ET for 21 years. I am on Hydrea 500mg 4 days a week and 1500mg 3 days a week. I do not have any of the known mutations such as JAK2, CALR or MPL. They are still studying this disease and looking for other mutations.

https://www.nccn.org/patientresources/patient-resources/guidelines-for-patients/guidelines-for-patients-details?patientGuidelineId=27

Good luck everyone and study up. Knowledge is power.
Also you will feel much better if you drink lots of water and eat a diet free of processed foods.

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Replies to "Hello All, Here is a wonderful booklet for you to read. It may look too complicated..."

Thank you so much for providing this link!

Extremely helpful!