C. diff, SIBO and chronic nausea

Posted by jillannw @jillannw, Dec 25, 2018

I started 8 months ago with either food poisoning or a stomach flu. I have never recovered. I have had every test done and continue to suffer from nausea everyday. In the middle of this I was diagnosed with and treated for c-diff twice but because I didn’t have the classic symptoms the drs at Mayo thought they were false positives. I also was diagnosed and treated for SIBO twice. The nausea everyday which is where this all started never went away. Has anyone had this and come up with a solution?

Interested in more discussions like this? Go to the Digestive Health Support Group.

Profile picture for mikejjb123 @mikejjb123

I used to have a period when I would have nausea for several days or so if not weeks but it would go away for a time. Now I have low level nausea that remains constant and has not gone away for at least 2 months. Doesn't matter what I eat or don't. Raise my head when sleep or not. Any ideas what to do? Thanks.

Jump to this post

Thank you. I didn't want to add too much detail. I have been to numerous GIs and hospitals including Johns Hopkins and Georgetown. Nothing seems to be helping.

REPLY
Profile picture for mikejjb123 @mikejjb123

I used to have a period when I would have nausea for several days or so if not weeks but it would go away for a time. Now I have low level nausea that remains constant and has not gone away for at least 2 months. Doesn't matter what I eat or don't. Raise my head when sleep or not. Any ideas what to do? Thanks.

Jump to this post

Has anyone looked at your gall bladder? I had low level queasiness for months, and that was the source of the problem. It was removed, and while the nausea didn't stop instantaneously, it quit entirely about a month after the surgery.

REPLY
Profile picture for mikejjb123 @mikejjb123

I used to have a period when I would have nausea for several days or so if not weeks but it would go away for a time. Now I have low level nausea that remains constant and has not gone away for at least 2 months. Doesn't matter what I eat or don't. Raise my head when sleep or not. Any ideas what to do? Thanks.

Jump to this post

Have you checked your ✔️ blood pressure when you get nausea it might cause by low blood pressure if you're standing up. 🤮 Sometimes low blood pressure can cause you to have symptoms like nausea it might be like postural postural blood pressure something like that.

REPLY
Profile picture for crazykbl @crazykbl

Have you checked your ✔️ blood pressure when you get nausea it might cause by low blood pressure if you're standing up. 🤮 Sometimes low blood pressure can cause you to have symptoms like nausea it might be like postural postural blood pressure something like that.

Jump to this post

Thank you for your input! Much appreciated!

REPLY
Profile picture for mikejjb123 @mikejjb123

I used to have a period when I would have nausea for several days or so if not weeks but it would go away for a time. Now I have low level nausea that remains constant and has not gone away for at least 2 months. Doesn't matter what I eat or don't. Raise my head when sleep or not. Any ideas what to do? Thanks.

Jump to this post

I have had constant nausea for several years. Doctors have tried several medications nothing helped just made things worse. I talked to a nurse and she suggested that I asked my doctor to prescribe a low dose of haldol. I have been on haldol for almost a month and my nausea is at a 3 from a 7. I also had constant abdominal spasms and haldol has helped that also.

REPLY
Profile picture for tjanet @tjanet

I have had constant nausea and constant abdominal spasms for almost 3 years. My GI doctor kept treating it as IBS even when I didn't have IBS symptoms. Finally a few weeks ago I talked with a very educated nurse and she suggested that I talk to my GI doctor about trying a low dose of haldol. My doctor decided to see if haldol helps, I have been on it for 3 weeks and I feel much better.

Jump to this post

Sounds like some of the effects I’m having too. As soon as I wake up my stomach feels like it’s inflamed and it feels jittery, slight nausea and lightheadedness. These symptoms last all day and up to around 9:00pm when they subside. This had all started about three years ago after going through chemotherapy for breast cancer . The first chemo treatment I got c-diff and was put on antibiotics. Only had two chemo treatments before getting mastectomy. I went to GI doctor and was put on Nortriptyline. Doesn’t help the symptoms during the day. What does haldol do and I’m wondering if it could help my symptoms.

REPLY
Profile picture for d13 @d13

Sounds like some of the effects I’m having too. As soon as I wake up my stomach feels like it’s inflamed and it feels jittery, slight nausea and lightheadedness. These symptoms last all day and up to around 9:00pm when they subside. This had all started about three years ago after going through chemotherapy for breast cancer . The first chemo treatment I got c-diff and was put on antibiotics. Only had two chemo treatments before getting mastectomy. I went to GI doctor and was put on Nortriptyline. Doesn’t help the symptoms during the day. What does haldol do and I’m wondering if it could help my symptoms.

Jump to this post

I also have a history of A-Fib diagnosed at the same time as breast cancer. Haven’t had an episode of A-Fib for about year.

REPLY
Profile picture for mikejjb123 @mikejjb123

I used to have a period when I would have nausea for several days or so if not weeks but it would go away for a time. Now I have low level nausea that remains constant and has not gone away for at least 2 months. Doesn't matter what I eat or don't. Raise my head when sleep or not. Any ideas what to do? Thanks.

Jump to this post

Thanks. I think it is some of the foods I eat. What is Haldol? I never took it. Be good.

REPLY
Profile picture for d13 @d13

Sounds like some of the effects I’m having too. As soon as I wake up my stomach feels like it’s inflamed and it feels jittery, slight nausea and lightheadedness. These symptoms last all day and up to around 9:00pm when they subside. This had all started about three years ago after going through chemotherapy for breast cancer . The first chemo treatment I got c-diff and was put on antibiotics. Only had two chemo treatments before getting mastectomy. I went to GI doctor and was put on Nortriptyline. Doesn’t help the symptoms during the day. What does haldol do and I’m wondering if it could help my symptoms.

Jump to this post

I would guess, ( I am not a doctor!) but it sounds to me like you have excess stomach acid. I have it from taking pain pills. My doctor gave me a prescription for something like Prilosec. I take the pill first thing in the morning and get relief all day. I take tums at night. Common side effects of Nortriptyline include nausea. I'd bring this up to your doctor.

REPLY
Profile picture for mikejjb123 @mikejjb123

I used to have a period when I would have nausea for several days or so if not weeks but it would go away for a time. Now I have low level nausea that remains constant and has not gone away for at least 2 months. Doesn't matter what I eat or don't. Raise my head when sleep or not. Any ideas what to do? Thanks.

Jump to this post

sounds like excess stomach acid. Try Prilosec or Tums and see if it makes a difference!

REPLY
Please sign in or register to post a reply.