Hello, Welcome, and Congratulations on your new transplant!

I too, am a PKD survivor and had a kidney transplant 4 years ago. 11 weeks out is still pretty early, and your body is probably still trying to figure out what the heck happened:) And you are correct, some of the meds you are on now, may be reduced or eliminated over the next few months.

I am allergic to Bacitrim, and so was not put on that drug. Instead, I did a series of breathing treatment for my antibiotics, which had some icky side-effects. I think they lasted around 2 months and then I was off of them. So, most likely, you'll be off the Bacitrim soon.

The whoosh low tone sound reminds me of how I felt, when I had blood pressure issues. I had the PKD high BP, before the transplant, and then after transplant, I had low BP for a year or two. Neither feels great. With high BP - headache and whoosh feeling in my head, ringing, anxiety, etc. With low - memory issues, light-headed, lower energy.

Brain fog was for real and it's no wonder. Transplants tend to keep us under anesthesia for an extended period of time, which can fog up the brain. Kidney failure, means a lot of toxins don't get filtered from our system, which can make the brain foggy. And then, all the meds we take to avoid organ rejection have side-effects, that can include brain fog. I started doing crossword puzzles and playing online solitaire, woordle, etc in my spare time. My first AARP crossword puzzle after my transplant took me over an hour to complete:) But I kept at it, and now I whiz through them. The healing capacity of the body is truly amazing!

Don't hesitate to talk to your transplant team. I remember reading up on side-effects of one of my meds, and determining I was just going to have to deal with it. Then, I mentioned it to my doctor. He reduced the dosage and the side-effect was eliminated.

Jump to this post