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Side effects from meds after Kidney Transplant

Transplants | Last Active: Apr 12 2:43am | Replies (4)

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@stephanierp

Hello, Welcome, and Congratulations on your new transplant!

I too, am a PKD survivor and had a kidney transplant 4 years ago. 11 weeks out is still pretty early, and your body is probably still trying to figure out what the heck happened:) And you are correct, some of the meds you are on now, may be reduced or eliminated over the next few months.

I am allergic to Bacitrim, and so was not put on that drug. Instead, I did a series of breathing treatment for my antibiotics, which had some icky side-effects. I think they lasted around 2 months and then I was off of them. So, most likely, you'll be off the Bacitrim soon.

The whoosh low tone sound reminds me of how I felt, when I had blood pressure issues. I had the PKD high BP, before the transplant, and then after transplant, I had low BP for a year or two. Neither feels great. With high BP - headache and whoosh feeling in my head, ringing, anxiety, etc. With low - memory issues, light-headed, lower energy.

Brain fog was for real and it's no wonder. Transplants tend to keep us under anesthesia for an extended period of time, which can fog up the brain. Kidney failure, means a lot of toxins don't get filtered from our system, which can make the brain foggy. And then, all the meds we take to avoid organ rejection have side-effects, that can include brain fog. I started doing crossword puzzles and playing online solitaire, woordle, etc in my spare time. My first AARP crossword puzzle after my transplant took me over an hour to complete:) But I kept at it, and now I whiz through them. The healing capacity of the body is truly amazing!

Don't hesitate to talk to your transplant team. I remember reading up on side-effects of one of my meds, and determining I was just going to have to deal with it. Then, I mentioned it to my doctor. He reduced the dosage and the side-effect was eliminated.

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Replies to "Hello, Welcome, and Congratulations on your new transplant! I too, am a PKD survivor and had..."

Hi Stephanie.

Thanks for your reply!

Happy to hear of the success of your kidney transplant!!

I’ve just met with my nephrologist today. We did a brain ct scan and all was good there, they wanted to rule out aneurisms.

We are going off Bactrim through Monday to see if there are any changes in the numerous symptoms. We will make any decisions from there, either to take it every other day or more likely switch to another antibiotic. Fortunately I will only be on antibiotics for another 3 months at most.

I am excited to find solutions to create the best quality of life this side of transplant. I’ve not really been on meds my whole life and besides PKD have been healthy, active and enjoying life.

I’m sure the meds are an overload for my system but realize their purpose and look forward to the right mix to accomplish the necessary goals.

I’ve been able to get back to tennis, I love to be active. Been playing for a couple weeks now and so good to be out there, even if I’m still just playing at 2/3 my potential. I’m being patient and trying not to push myself too hard too quick.

I’m grateful with you for your successful transplant and pray you have continued health and success!!!

Thanks much for your kindness by taking the time to reply!!

Matthew