I had scan of nasal passages around 2019 or so, pretty much because I pushed for it since the ENT who ordered it kept saying he couldn't "see" anything wrong with his office equipment. Report came back as negative for anything other than what I've known for years: deviated septum, more pronounced on the left side. His suggestion: that he could refer me to a surgeon! But there were no growths, etc., just the deviated septum that had been initially diagnosed decades ago (I'm presently 75, and lived with my septum deviation). No thank you! So about 4 to 5 years after that scan, I experienced the nightmares back in March (4 episodes in total). NO bleeds since the end of March, thank goodness. Other symptoms, same as when I sought help from that ENT years ago (post nasal drips, "fullness" and sensitivity around the eyes, etc). He had been touted as having such intense education and training, as well as having published research on sinus issues, which is why I had decided to seek his "expertise" --- so much for that!
I feel pretty jaded at this point, since I've checked out several otolaryngologists within different medical groups and have not found one yet that I'd involve in my medical team. However, I have learned something rather interesting: I have vascular issues, and am under the care of an incredible doctor from Columbia Presbyterian who is convinced that my brain demyelination (and scads of resulting issues) is NOT related to MS but rather to other reasons, including my vast history with vascular, CNS and myalgia/arthralgia...and while doing research, I learned that "sudden, copious nasal bleeding" has been associated with specific vasculitis, and indeed I've experienced temporal, facial, and cranial symptoms. It was an "AHA!" moment for me, considering the traumatizing events just 4 months ago. That Columbia Presbyterian specialist has referred me to a colleague at that medical center, to evaluate further. The obstacle right now: finding transportation since it is quite distal from where I live. I'm working on that, via incredible neighbors who have offered to help out. Along with the up-to-2 hrs round trip travel, and wait time (yes, three kind souls have offered to wait while I'm being evaluated!), we're talking at least 3 hours. You don't want to know what I've been quoted from private transportation, absolutely crazy and definitely not affordable. I'm planning it all out, but this involves time, and meanwhile the lesions keep forming, symptoms (many!) still make themselves known, and the emotional/mental stress is overwhelming. But I want answers, and the Columbia doctor evaluating the brain scans has offered hope, whereas the former doctors just kept saying "Sorry, have no idea what's causing your demyelination...can't do anything more."

My life is indeed complicated, as it is for so many other people, and for some a lot harder road to travel. We'll see what transpires.
Gracias for your kind words of caring.💖