Neuropathy: My Journey

Posted by artemis1886 @artemis1886, Nov 5, 2023

I have a question. Have any of you with small fiber neuropathy along with severe axonal sensorimotor polyneuropathy have these problems after being diagnosed?
2015 diagnosed with the polyneuropathies
2020 diagnosed with hypothyroidism (can cause neuropathy but
I was diagnosed with neuropathy first) thyroid was fine
Cysts and tumor on thyroid
2023 doing testing for diabetes first time glucose levels elevated
found cysts on pancreas A1C level 5.7 glucose 103
Yes that was fasting.
Has anyone had these problems after being diagnosed with neuropathy?
They do not know the etiology (cause) of mine!
University of Boston research neurology is starting testing on me for genetics

Interested in more discussions like this? Go to the Neuropathy Support Group.

caregiver77 | @caregiver77 | Apr 8 10:16am

Is small fiber neuropathy similar to Multiple Systems Neuropathy? It sounds like it affects similar body functions. MSA - C referral sent to Mayo but don’t know if now we call them for appointment or they call us.

artemis1886 | @artemis1886 | Apr 8 5:04pm

From what I have read it does not affect the heart small fiber neuropathy does. It’s small fiber neuropathy but in the heart called cardiac autonomic neuropathy. They can’t control by blood pressure or arrhythmias. The electrophsiologist said they can’t do an ICD because I don’t have the nerves in my heart.
They are different
https://academic.oup.com/book/25303/chapter-abstract/191540457?redirectedFrom=fulltext#