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LDN dosing for fibromyalgia and ME/CFS

Fibromyalgia | Last Active: Oct 9 10:56am | Replies (27)

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@mrsmorden

Hi! Thanks for sharing so much information re: your experience with LDN. I’m looking for a reputable specialty pharmacy with a good price. Would you mind sharing the information about the pharmacy you use? Thanks!

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Replies to "Hi! Thanks for sharing so much information re: your experience with LDN. I’m looking for a..."

Sure, no problem! I use Care First Specialty Pharmacy in New Jersey (there is a pharmacy of the same name in another state; I don’t think they’re related). My PCP brought it to my attention because she uses it for most of her patients and according to her had the best prices. I was previously using a different pharmacy and found this to be true. I’m in Illinois; they ship across the country and I have at least one other doctor that’s familiar with them, so I think they are reputable. The techs and pharmacists are helpful too.

The tradeoff as compared to my local pharmacy is that it can take a bit longer for them to start processing a new prescription or refill, at least two business days in my experience, unless you call them yourself after your script gets sent. And sometimes if I have to call, I’m on hold for a while, but not an excessive amount of time. But once your prescription is established, you can just call into their automated system to request refills and they’ll send you text and/or email confirmations. And like with any specialty pharmacy, it takes some time to process it.

But they can do any formulation. If you’re okay with tablets, that’s least expensive. They can make any size (I think—I take 6 mg, which is an unusual dose) scored tablet for .5 mg and higher. I used to get 4.5 mg tablets, a more common dose, so they can probably do it in half milligram increments depending on what you need.

I hope it helps no matter where you choose!

Thank you!!! This is extremely helpful. I found that pharmacy yesterday, so I know precisely which one you’re talking about. If my local compounding pharmacy isn’t easy to work with or is too expensive, it’s great to know I have a quality alternative. Thanks again!!!