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Essential Thrombocytosis symptoms

Blood Cancers & Disorders | Last Active: Sep 5 1:54pm | Replies (72)

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@janemc

It seems that different people need different doses. What you're doing is working for you -- that's what's important!

You might want to look back through your lab results to see if you can find your "driver mutation." Is it JAK2? CALR? MPL?

My oncologist says that those of us with the MPL variation seem to need a higher HU dose.

All good wishes!

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Replies to "It seems that different people need different doses. What you're doing is working for you --..."

It's not necessarily true about the higher HU dose for MPL. I have the ET JAK2 mutation and need to take 1500mg of HU daily and aspirin to keep my platelets just over 450.