← Return to Current diagnosis is Amyloidosis and multiple myeloma
DiscussionCurrent diagnosis is Amyloidosis and multiple myeloma
Blood Cancers & Disorders | Last Active: Jul 14, 2018 | Replies (51)Comment receiving replies
Replies to "Has anyone diagnosed with type AL Amyloidosis had success after treatment with Darzalex? If so, how..."
Hi. Apologies for coming into this conversation wiithout having details about your situation. But I can tell you that I startedreceiving Darzalex in January. Following established protocol I completed a series of 8 weekly treatments, and this Thursday I will get the 8th of 8 biweekly treatments. From there on treatments are monthly. Initial side effects were bone, muscle and joint pain along with other miscellaneous ones. I learned that taking over the counter Claritin majorly reduced those side effects. My myeloma numbers have dropped dramatically. I look forward to my August appointment at Mayo to learn what this will look like going forward. I was interested in hearing from others who have had this treatment. I am open to phone conversation on this or other topics.