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Side effects from meds after Kidney Transplant

Transplants | Last Active: Apr 12 2:43am | Replies (4)
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@cehunt57

@matthewmcbrien congratulations on your transplant! You are still not very far out from transplant. I am 18 years post pancreas transplant. I am inactively listed for kidney transplant. Thankfully (thank God) my eGFR is still too good.
I’m curious; what immune suppression are you on? Whatever it is there are side effects and a lot of adjustments to be made. I promise you things do get easier and become better with time.
I too had Bactrim and had difficulty with it. I didn’t experience the side effects you describe but there were others. There are lots of immune suppressants, antibiotics, antivirals, anti fungals ….. available. Your best line of support is your transplant providers. Have you talked to them about your concerns?

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Replies to "@matthewmcbrien congratulations on your transplant! You are still not very far out from transplant. I am..."
matthewmcbrien | @matthewmcbrien | Apr 12 2:14am

Hi Cheryl!
Thanks for your feedback and help.

My purpose here was to reach out beyond my nephrologist and own research to see if I could discover more beyond what is readily available.

I’ve just met with my nephrologist today. We did a brain ct scan and all was good there, they wanted to rule out aneurisms.

We are going off Bactrim through Monday to see if there are any changes in my numerous symptoms. We will make decisions from there, either to take it every other day or more likely switch to another antibiotic. Fortunately I will only be on antibiotics for another 3 months at most.

I am excited to find solutions to create the best quality of life this side of transplant. I’ve not really been on meds my whole life and besides PKD have been healthy, active and enjoying life.

I’m sure the meds are an overload for my system but realize their purpose and look forward to the right mix to accomplish the necessary goals.

Best wishes for your continued health and success!!! Thanks so much for your kindness in replying with insight.

Matthew

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