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@janeaddams

@dloos I had the same reaction; although it's hopeful, he's a young guy with more resilience. I'm a senior+, and expect recovery to be slower, as in any illness, than when I was much younger However, I think his advice that after a certain point, it's better to try to move ahead with acceptance and try to shift one's attention to ... more pleasant things That's where I am, at 13 months in and having just been told my long-awaited 4/1 appointment at the LC clinic at NWMH in Chicago has been moved to ... September 11, because the neurologist is no longer seeing LC patients. Not cheery that even some doctors are giving up hope that they can actually help us get effective treatment. Positive reframing is a challenge, but I know it's the way to go, and I'M TRYING... plus his other ideas... eat well, sleep and rest more, and trying not to be so impatient with the process. Glad to have this group to turn to for support.

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Replies to "@dloos I had the same reaction; although it's hopeful, he's a young guy with more resilience...."

Yes, same with me. I feel I am trying to do all the things...eat, rest, stay positive. I went through stages where I could neither eat nor sleep! I’ve lost over thirty pounds. In that regard, I guess I am somewhat better. My weight has stabilized, and I am sleeping again. Yet, my symptoms continue and get worse.

I try to stay in a more positive frame of mind.....but, often fail.
I am under doctor’s care for LC, but so far none of the therapies offered have helped.