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Complete left side pain, from top to bottom.

Neuropathy | Last Active: Apr 12 7:49am | Replies (36)

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@artemis1886

Have you been tested for small fiber neuropathy? It affects the heart. I had a one month holter monitor test.
It showed I was having bradycardia and tachycardia ( too slow/too fast) adding to my balance and dizziness. I feel it a lot of people do not feel the arrhythmias. The cardiologist told me everything was fine. Which I knew it wasn’t it felt like my heart would stop then jump start back really weird feeling. I went to my son’s electrophysiologist and he diagnosed me with cardiac autonomic neuropathy. As going through RN school I knew what it meant. Naturally, I told him he did not know what he was talking about and walked out. My neurologist said the gold standard for testing small fiber neuropathy was a biopsy in three different places and I told him go ahead. Needless to say I had to go back and apologize never so embarrassed. He looked at me and said that’s okay that’s how a lot of people react when we tell them they only have 8 years left to live. Arrhythmias and my blood pressure goes every where. I also have gastroparesis complements of the neuropathy, bladder, occasionally my eyes act up and kidneys problems.
I constantly have balance problems and dizziness part of the neuropathy.
Dr. Anne Oaklander (Boston I was referred to her) suggested I go to Baltimore to be tested for seronegative Sojourns. My eyes constantly water been diagnosed with dry eyes and dry mouth. I have six teeth that need crowns due to dry mouth. Pretty soon my whole mouth will be nothing but crowns.

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Replies to "Have you been tested for small fiber neuropathy? It affects the heart. I had a one..."

I am so sorry to hear about your neuropathy…. I hope life is at times bright for you..in the midst of all.