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Just diagnosed with pancreatic NET stage 1

Neuroendocrine Tumors (NETs) | Last Active: May 14 8:56pm | Replies (152)

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@jaxterdb

Hi. I was very lucky. I didn’t have to have chemo or radiation. I just had CT scans (pelvis, abdomen and chest) every 6 months for a few years and then annually after. I did develop a pseudo cyst that had to be drained, but is was a pretty simple procedure. If you are familiar with Randy Pauch, I had the same doctor, at UPMC, in Pittsburgh. I do take two 36,000 unit Creon capsules with every meal. It does help but I still have some issues. The Creon is very expensive but I’m lucky that I get it from the VA as I am a disabled veteran.

Since this surgery, I’ve had surgeries for prostate cancer (2010), lung cancer (2019) and kidney cancer, last September. These were all primary cancers. The doctor that performed the last surgery said my medical record was remarkable. I also have a ton of other stuff, hypertension, type 2 diabetes, essential tremor and too many others to mention. If I live long enough I might write a book. Take care!

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Replies to "Hi. I was very lucky. I didn’t have to have chemo or radiation. I just had..."

Did you suffer any recurrence of the NET?