I have IgA kappa myeloma. There are only 6,000 folks with IgA kappa in the USA. My Atlanta myeloma specialist knew things my hematologist didn’t. For example, M-spike is not reliable for kappa light chains so serum immunoglobulins need to be measured. My Austin hematologist is listed as a myeloma specialist on the Healthtree website which is confusing to me. Must be that the IgA kappa myeloma folks are few and far between maybe. I consider my Atlanta myeloma specialist to be captain of the ship.

I watch Healthtree myeloma education videos. I read SmartPatients.com myeloma conversations regularly to keep up to date on latest developments in research. I attend the San Francisco and Philadelphia virtual myeloma groups regularly. They are listed on myeloma.org.

This week CAR-T therapy was approved after first line of treatment by FDA. A new BiSpecific therapy will be approved by FDA soon.