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PET scan vs Cerebrospinal fluid (CSF) test

Brain & Nervous System | Last Active: May 14 3:19pm | Replies (16)

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@naturegirl5

@bryanbay Did your physician share the rationale for the CSF test vs. PET scan? What might either of these tests show and how will these guide treatment recommendations?

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Replies to "@bryanbay Did your physician share the rationale for the CSF test vs. PET scan? What might..."

In the original post Bryan stated … Unfortunately, my insurance covers the CSF but not the PET scan.….

Brian I might ask the physician to push back using Medicare’s new position - namely that knowing the extent of amyloid will shape the decision about when to/whether to begin any of the new meds that are an antibody to the amyloid formation. CSF can say there is amyloid on board but that’s not much better than available blood tests revealing the presence of TAU amyloid. I had that one.

My physician referred me for the PET scan because of results from a Cognitive Assessment. The intent is to see if Alzheimer's can be ruled out. I'm not yet on Medicare because my wife has insurance through her employer. I don't know how the results might be used to guide treatment but do have a follow-up scheduled with my physician.