Hello again Colleen,

In addition, my leiomyosarcoma is appearing in a rare location which is the spine and it is also rare that it has bone involvement since it is a soft tissue cancer. The oncologist at the Moffitt Cancer Institute said she has only seen 4-5 other cases like mine. Many others had it in their soft tissues. I have to get proton radiation treatments rather than the conventional photon type due to proximity of the spine and esophagus. My chemotherapy will be impatient for 5 days, then two weeks off, then impatient for 5 days again, etc. This process will continue for at least 3 months or about 3 rounds, then they will decide if I am in remission. My ultimate goal is that it never returns.