Severe Chronic Nerve Pain

Posted by penn @penn, Mar 28 12:44pm

What has helped Patients with severe nerve pain.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

So far I have been prescribed all the pain remedies with no success.

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@sophie46

I live in Canada and purchase the Alpha Lipoic Acid at Shopper's Drug Mart. Their brand is called Life and I take 600mg a day.

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I did try Alpha Lipoic Acid from a different source and sadly it didn't ease the nerve pain in my feet.

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@penn

I forgot to mention, I have a Medtronic Pain Pump

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I have a medtronic pain pump. Implanted in 2014. They stopped adding medicine in 2017 due to myself using Delta! They told me to come back in Nov of 2019 for removal of pump. Big surprise, all clinics shut down due to beginnings of Corona/Covid! Long story shot, 2024, I still have an empty pump inside of me. It has migrated out of place, the alarms still go off and others can hear it. It is annoying and if I bum0 in to anything, it hurts! I am a Chronic Pain Sufferer with other Comorbities and I am in alot of pain all the time, not to mention Peripheal Neuropathy along with Lipedema! I don't need this pump annoying me either! I try not to cry anymore, all I have is weed periodically and I live in a stupid state where we haven't gotten with the times yet!! This state is an ALCOHOL state and it sickens me with the amount of drunk drivers on a weekly basis just in my area. I suffer way to much to hear that crap. Because of the migration of this pump...I will never have any foreign object implanted in my body again!
Jill...😟

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@penn

dyldailyhope, Thank so much!!!! Every time I've had spinal injections I get more pain. I don't think anything can be done for me anymore??But I appreciate all your help!

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Hi @penn - ugh, sorry the injections are bringing you more pain. That must be frustrating for you. It's more than likely your body's way of telling you it's had enough.

I experienced added pain from injections, too, where as my central nervous system just put the brakes on and said you're making things worse, stop it.
Central sensitization syndrome is what you may be experiencing. Are you familiar with CSS?

Understandably you feel like nothing can be done for you anymore and that may be correct medically speaking but there are more things that can be done to help you manage how you feel and what you're going through . Have you begun to think outside of the box and explore non-medical pain management options like cognitive behavioral therapy, mindfulness, meditation and breath work?

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@jillo65

I have a medtronic pain pump. Implanted in 2014. They stopped adding medicine in 2017 due to myself using Delta! They told me to come back in Nov of 2019 for removal of pump. Big surprise, all clinics shut down due to beginnings of Corona/Covid! Long story shot, 2024, I still have an empty pump inside of me. It has migrated out of place, the alarms still go off and others can hear it. It is annoying and if I bum0 in to anything, it hurts! I am a Chronic Pain Sufferer with other Comorbities and I am in alot of pain all the time, not to mention Peripheal Neuropathy along with Lipedema! I don't need this pump annoying me either! I try not to cry anymore, all I have is weed periodically and I live in a stupid state where we haven't gotten with the times yet!! This state is an ALCOHOL state and it sickens me with the amount of drunk drivers on a weekly basis just in my area. I suffer way to much to hear that crap. Because of the migration of this pump...I will never have any foreign object implanted in my body again!
Jill...😟

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I have a pain pump too. I had them put saline solution in it to keep it lubricated. If they won't do what you ask go to another pain Dr.

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@jwm61

I have a pain pump too. I had them put saline solution in it to keep it lubricated. If they won't do what you ask go to another pain Dr.

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I had my pain pump implanted last year (Medtronics). What drives me crazy is that after several increases in the pump output, I had about one week of decent pain relief, then, nothing. In the past 10 months, I have had it increased so many times I have lost track. I was in so much pain a few days ago, that I took a left-over oxycodone. It really helped bring down my pain. I just had the pump output increased yesterday by 30%. It reduced the pain a little until this morning. Even with an added bolus, a lot of the pain has returned. How can a pain pump not work better than oxycodone. My pain management doc says the pump should work better than the oxy. The reality is that it doesn't. I'm am hoping that I can hang on long enough to have my nonfunctional spinal cord stimulator removed so I can get an MRI to see exactly what's going on with my back. Anyone share a similar experience a similar experience?

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@heisenberg34

I had my pain pump implanted last year (Medtronics). What drives me crazy is that after several increases in the pump output, I had about one week of decent pain relief, then, nothing. In the past 10 months, I have had it increased so many times I have lost track. I was in so much pain a few days ago, that I took a left-over oxycodone. It really helped bring down my pain. I just had the pump output increased yesterday by 30%. It reduced the pain a little until this morning. Even with an added bolus, a lot of the pain has returned. How can a pain pump not work better than oxycodone. My pain management doc says the pump should work better than the oxy. The reality is that it doesn't. I'm am hoping that I can hang on long enough to have my nonfunctional spinal cord stimulator removed so I can get an MRI to see exactly what's going on with my back. Anyone share a similar experience a similar experience?

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I pretty much have the same story. My experience is similar to yours. That is the experience I have had with my pain pump and to get relief I had to take a couple of oxycodone that I had left over from a previous operation. I have just about quit doing a bolus as it just doesn't help.

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@jwm61

I pretty much have the same story. My experience is similar to yours. That is the experience I have had with my pain pump and to get relief I had to take a couple of oxycodone that I had left over from a previous operation. I have just about quit doing a bolus as it just doesn't help.

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I tried to get my pain doc to give me a script for oxycodone. He refused and just amped up the doage. I am going to call his office and ask them to either: reduce the dosage way back (I think the higher dosage has begun to interfere with my sleep) or, pull the hydromorphone out and replace with saline. I was on a different post from someone who said that they did exactly that. I asked if there were any bad side effects. Waiting for a response. What are your plans for a pump that doesn't help? Some have said that they had the pump removed.

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@sophie46

For peripheral neuropathy in my feet I use Alpha Lipoic Acid and Compression Socks. This does ease my pain.

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Greetings.
What brand compression socks work best for you?
I should try them. TYVM.

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@charlotta98

Greetings.
What brand compression socks work best for you?
I should try them. TYVM.

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I bought the socks from Temu. I have not tried any other brand.

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