← Return to Cerebral Brain Atrophy: Anyone else out there?

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@avmcbellar

Hi @artist01 oh those headaches are awful to deal with. At first they were occurring twice a week. I was drinking regular coffee then every day but it did not help. My doctor wrote a prescription for a pain killer which I never filled. I opted to use Tylenol instead which he approved but it did not help either. I found that a bag of ice on my head gave some relief by decreasing the pain so I could at least sleep. Last year I eliminated coffee from my diet because less caffeine helps to decrease my neuropathy symptoms. Consuming less carbohydrates also helps.
The tea I drink for headaches is an herbal tea containing turmeric which is a blood thinner. The tea has no caffeine but it seems to work well for me. Thank you for the suggestion. I now drink decaffeinated coffee and an occasional regular orange pekoe tea.
After my last surgical repair of my AVM I was left with neuropathy. I did notice I had a burning in my stomach or esophagus which made me miserable all day, I did not know the cause. I even stopped coffee because of its high acidity. I thought maybe it was the ALA supplement so I stopped that too. No Mayo Clinic members responded to my relevant posts for helping me find answers. It seemed no one had a similar experience. Through all my trial and error attempts, I believe I have finally figured it out. To beat it, I eat small meals plus exercise. What a relief!

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Replies to "Hi @artist01 oh those headaches are awful to deal with. At first they were occurring twice..."

@avmcbellar Yes, those headaches. When first diagnosed with the brainstem AVM, I had constant every day headaches and was prescribed Elavil, which helped the headaches but turned me into a zombie. There have been numerous prescription pain killers since, but I've finally stopped all of it so I could regain my brain power once more. I still get daily headaches but either I've grown accustomed to them or they're less painful now. It is what it is! I don't tolerate prescription meds of any kind, so am happy my doctors comply with that, and I can think clearly again.

I don't know whom to address this too. I notice no one addresses the emotional aspects of having this condition. I find myself feeling sad, if not depressed and hopeless, over having constant headaches and dizziness, not being able to walk or live a pain free life. Alex