Hello,
I am new to this group and so appreciate what others have shared. I am in a quandary. I was diagnosed with FL 3 months ago due to one enlarged lymph node below my left jaw, otherwise, I am completely asymptomatic. Two needle biopsies confirmed lymphoma cells and the node excision confirmed FL.
My oncologist suggested Wait and Watch until my PET scan, follow-up bone scans and MRIs show multiple bony lesions in my spine, hips and pelvis. Again, I have no pain anywhere! However, due to the lesions chemo is recommended to hopefully put me in remission. Like other comments above, my team describes this as a chronic condition that will always need watching and is not terminal.
I am curious if any others have bony lesions with FL who decided to continue to Wait and Watch?
BTW, my labs are all good, including calcium and creatine, but they started giving me calcium injections last month to reduce fracture risk.
Thank you, Everyone!