← Return to Cerebral Brain Atrophy: Anyone else out there?

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@oldsuzanne55

Just checked this site ,again,after a long time. Have had 2 appointments with a new doctor. One I wanted no longer takes new patients, I think he is head of department.. new one is a movement disorder specialist. We were told my husband does not Parkinson’s. He has cerebellum ataxia. Stopped the sinemet and it made no difference.Dr saw him twice, one month apart. Tapered him off the sinemet and he had not taken it for 2 weeks before the appointment. Exam was unchanged from 1st appontment. will start PT again and get a Walker for bad times. He is very reluctant to use one. Have noticed that he is much worse in am , needs to eat frequently, I think he is having hypoglycemic periods, his walking is terrible when this happens. Will try keto diet n and see if it helps.

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Replies to "Just checked this site ,again,after a long time. Have had 2 appointments with a new doctor...."

Hello, Have had cerebellum ataxia for years now. There is no known treatment or medication. i've seen neurologists galore; PT is the only recommendation and it has not helped. Living with the condition is the only solution. Alex

I've learned to love my walker, after rejecting the idea at first. The main saving grace for using it is to save us from falling. Even indoors. I hope your husband will give it a try soon. It's mostly a matter of getting used to it and just accepting it as a helpful tool in our journey. I always tell myself, "It is what it is." Just grateful to be alive most days! Wishing you and your husband warmest wishes.