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howardjames (@howardjames)

Cerebellum Brain Atrophy

Stroke & Cerebrovascular Diseases | Last Active: Apr 6 9:46am | Replies (197)

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@oldsuzanne55

Thx for your input. We have an appointment with the neurologist on September 15and I have lots of questions. The dr is not a specialist in Parkinson’s and I want one who is , so am going to ask for a referral. I cannot get him up by myself. I call one of our sons or 911 and the police come. He has good days and bad days, in regard to his walking. If he sits door a long time, over an hour on a hard chair, he is terrible. Legs are like spaghetti. Sinemet helps but I keep telling him it only lasts 4 hrs and he has to take it on time.

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Replies to "Thx for your input. We have an appointment with the neurologist on September 15and I have..."

I'm so glad to hear that you have an appointment scheduled later this month, @oldsuzanne55. Yes, a Parkinson's specialist would be a good idea. This type of specialist would be called a Movement Disorder Specialist. It is a specific type of neurologist who specializes in movement disorders, Parkinson's being one of many movement disorders.

It sounds like a change in his meds (either the dosage or the frequency) would be helpful at this point, but the doctor can make that decision.

Here is a discussion group about tips for meeting with a new specialist that you might find helpful,
https://connect.mayoclinic.org/discussion/your-tips-on-how-to-get-off-to-the-best-start-with-a-new-specialist/
Will you post again after your appointment on the 15th? If you have any other thoughts or questions before then, please post them here.