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Cerebral Brain Atrophy: Anyone else out there?

Stroke & Cerebrovascular Diseases | Last Active: Aug 9 6:53am | Replies (272)
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@lupita1407

My wife at 53 years of age was diagnosed with cerebellar atrophy and has severe ataxia and vertical double vision. Cannot walk without a walker. I am wondering if anyone has read any articles about studies that have been done for treatment. I read one stating high doses of vitamin E and another about starting a gluten-free diet. We know there is no cure but am looking for anything to halt the progression or alleviate some of the ataxia

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Replies to "My wife at 53 years of age was diagnosed with cerebellar atrophy and has severe ataxia..."
Lisa Lucier, Moderator | @lisalucier | Nov 13, 2019

Hi, @lupita1407 - welcome to Mayo Clinic Connect. Not being able to walk without a walker sounds challenging. It sounds as though you are being an excellent advocate for your wife.

Hoping that @flo1957 @steph73 @menville @howardjames may have some input for you on studies they have read about or participated in. @johnbishop also may have some insight on relevant studies.

How is the vertical double vision impacting your wife's day-to-day life presently?

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pookigirle | @pookigirle | Feb 13, 2020

My cousin has cerebellar ataxia. She is mostly bed-bound but we too use a high dose of Vit E & B and as close to gluten-free as we can. It does seem to help but she still has bad days. I have been doing a lot of research and this particular disease, as so many, could be the result of a vaccine injury. Here is the link that shows there may be a relationship. Something to consider perhaps. I know vaccines awareness is growing and perhaps for a legitimate reason. The ingredients are totally horrible (you can read them on the CDC web site) and Pharmacuetical companies have ZERO liabilty for the vaccines produced thanks to the National Childhood Vaccine Injury Act of 1986 of which takes liability away from the pharma cos. https://www.icandecide.org/wp-content/uploads/2019/09/VaccineSafety-Version-1.0-October-2-2017-1.pdf (pages 7-9 states ataxia and nueroligical diseases for the first time)

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