← Return to Cerebral Brain Atrophy: Anyone else out there?

Discussion

Cerebral Brain Atrophy: Anyone else out there?

Stroke & Cerebrovascular Diseases | Last Active: Aug 9 6:53am | Replies (272)
Comment receiving replies
@steph73

My son has I’m told a very rare condition which has seen his brain shrink over the last few years. He has an immune deficiency and has since birth. He’s 21. He now has a tremor in both hands, balance issues, speech deteriorated and memory loss. Does anyone recognise these symptoms and able to point me in right direction. We a in the uk but I will travel anywhere if it will help him. Watching him deteriorate is breaking my heart

Jump to this post

Replies to "My son has I’m told a very rare condition which has seen his brain shrink over..."
Lisa Lucier, Moderator | @lisalucier | Mar 22, 2019

Hi, @steph73 - You may notice I combined your discussion with an existing one titled, "Cerebellum Brain Atrophy." I did this so you could meet a few of the other members who have posted about this condition. If you are responding by email you can click on VIEW & REPLY to see where your post is and to read through some of the other posts made by members on this topic.

Hoping that @adrenaline @07851930740 @menville @flo1957 @howardjames and others will return and offer their support and talk about any experiences they may have with autoimmune cerebral atrophy with symptoms of tremor in both hands, balance issues, speech deteriorated and memory loss as you face this with your son's condition.

You mentioned wanting others to point you in the right direction, @steph73. Would you prefer they talk about where to be seen, what therapies might be helpful, or something else that might help you with your son?

VIEW AND REPLY