← Return to Neuropathy: My Journey
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Neuropathy | Last Active: Apr 8 5:04pm | Replies (62)
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Replies to "I have been to 2 different Podiatrists and a Chiropractor. I get different answers. But no..."
I do not have a cause aka etiology. They believe they have it narrowed down to two different possibilities. 1. Autoimmune my esr, Ana, CRP, complement 3 are all elevated. I test negative for almost everything. You have to test 14 for Rheumatoid Arthritis and I tested 13. Really, to me that’s high enough to start treating it. I went to Boston to see Dr. Anne Oaklander and she believes Rheumatoid Arthritis, lupus or Sojourns. I also have a connective tissue disease according to my neurologist notes. The doctors now want me to go too Baltimore to be tested for seronegative sojourns.
To me it’s one of the most frustrating problems. Dr. Anne Oaklander has been studying this since before 2015 to me very little answers.
You need to go see neuromuscular neurologist (they specialize in neuropathy) and a rheumatologist. I also posted a lot of labs that Dr. Oaklander have done before I see her. If you would like to have the labs she requested I can send them to you. They are a lot.