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Neuropathy: My Journey

Neuropathy | Last Active: Apr 8 5:04pm | Replies (62)

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@kimba8138

I have been to 2 different Podiatrists and a Chiropractor. I get different answers. But no real answers to how I got here or what is causing it. Just labelling it as a Neuropathy. I was a runner. I ran Marathons, and trained for hours sometimes. One dr. said it was caused by running and another said that it could not be caused by over running.
I did go through a period of Anxiety. Almost debilitating. I went from being very active to just sitting all day and night. Not moving much. That is when I noticed something was wrong. I had some tingling and fuzziness in my feet and lower legs. This has been going on for a couple of years now. I just went and saw a Ortho. He thinks it may be from my back. I will now need a MRI. I get a lot of opinions but not a answer as of yet.
After trying different things, I will tell you what has made me feel much better. I take B vitamins, B12, B6, B1. And I got moving again. I exercise everyday. I walk or bike and some weights. I also use a vibration board. I massage my feet everyday or go get reflexology. I also eat a cleaner diet as many others have mentioned. I do not feel 100% but I do feel better and I my feet feel better at bedtime.
I am wondering how many people get Neuropathy but do not have a answer on why or what it was caused by.

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Replies to "I have been to 2 different Podiatrists and a Chiropractor. I get different answers. But no..."

I do not have a cause aka etiology. They believe they have it narrowed down to two different possibilities. 1. Autoimmune my esr, Ana, CRP, complement 3 are all elevated. I test negative for almost everything. You have to test 14 for Rheumatoid Arthritis and I tested 13. Really, to me that’s high enough to start treating it. I went to Boston to see Dr. Anne Oaklander and she believes Rheumatoid Arthritis, lupus or Sojourns. I also have a connective tissue disease according to my neurologist notes. The doctors now want me to go too Baltimore to be tested for seronegative sojourns.
To me it’s one of the most frustrating problems. Dr. Anne Oaklander has been studying this since before 2015 to me very little answers.
You need to go see neuromuscular neurologist (they specialize in neuropathy) and a rheumatologist. I also posted a lot of labs that Dr. Oaklander have done before I see her. If you would like to have the labs she requested I can send them to you. They are a lot.